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Patient-Reported Outcome Measures With Secondary Lower Limb Lymphedemas: A Systematic Review

机译:患者报告的次级下肢淋巴米患者的结果措施:系统评价

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Background: Patient-reported outcome measures are measures of patients’ health-related quality of life. They should be added to other lymphedema measurements. With an improved disease-free survival of secondary lower limb lymphedema, attention must focus on such assessments. Objective: The objectives of this study were to locate and critically appraise suitable patient-reported outcomes measures for lower limb lymphedemas and search for existing valid translations for native German speakers. Methods: A systematic literature research was conducted. 20 semantical categories for qualitative analysis were evolved. Six questionnaires available in English and some in validated translations remained for analysis. Results: Lower limb lymphedema patients experience poor quality of life, and one of the most critical denominators is skin quality. To establish skin care and prevent cellulitis, patients must learn about skin problems. Only two tools asked for past infections. This is considered crucial because of knowledge building and prophylactic behavior. Questions on movement restrictions were available in one questionnaire. As these have a close connection to one’s ability to perform activities of daily life, they can affect quality of life. Afflicted patients have problems with the choice and availability of clothing. Only three questionnaires asked questions about clothing or shoes. Lymphedema patients are exposed to more psychological stress than healthy subjects, but only three questionnaires covered questions about this burden. There was a lack of reporting on psychometric data (Cronbach’s alpha, intraclass correlation), which hinders the external validity. Analyzed questionnaires were available in English but only one in German. Conclusions: The analyzed questionnaires were in English, and only one was adapted and tested for native German speakers. For clinical practice, Devoogdt’s questionnaire is recommended despite some shortcomings. There is a need for validated lymphedema questionnaires in German.
机译:背景:患者报告的结果指标是衡量患者健康相关生活质量的指标。应将其添加到其他淋巴水肿测量中。随着继发性下肢淋巴水肿无病生存率的提高,必须关注此类评估。目的:本研究的目的是定位和批判性评估适合下肢淋巴水肿患者报告的结果指标,并为母语为德语的人寻找现有的有效翻译。方法:进行系统的文献研究。进化出20个用于定性分析的语义类别。六份英文问卷和一些经过验证的翻译问卷仍有待分析。结果:下肢淋巴水肿患者的生活质量较差,皮肤质量是最关键的分母之一。为了建立皮肤护理和预防蜂窝织炎,患者必须了解皮肤问题。只有两种工具要求提供过去的感染情况。这被认为是至关重要的,因为知识的积累和预防行为。关于行动限制的问题可以在一份问卷中找到。由于这些与一个人进行日常生活活动的能力密切相关,它们会影响生活质量。受折磨的患者在衣服的选择和供应方面存在问题。只有三份问卷询问了有关服装或鞋子的问题。淋巴水肿患者比健康受试者暴露在更多的心理压力下,但只有三份问卷涵盖了有关这一负担的问题。缺乏对心理测量数据的报告(克朗巴赫的阿尔法,组内相关性),这妨碍了外部效度。经分析的问卷有英文版,但只有一份德文版。结论:所分析的问卷是英文的,只有一份被改编并测试为以德语为母语的人。对于临床实践,尽管存在一些缺点,但建议使用Devogdt的问卷。在德国,有必要进行有效的淋巴水肿问卷调查。

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