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首页> 外文期刊>Annals of epidemiology >Who doesn't authorize the linking of survey and administrative health data? A general population-based investigation.
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Who doesn't authorize the linking of survey and administrative health data? A general population-based investigation.

机译：谁不授权链接调查和行政健康数据？基于人口的一般调查。

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PURPOSE: To determine the extent of authorization bias in a study linking survey and medical record data in a general population-based investigation. METHODS: Authorization status (authorized data linkage vs. not) was ascertained through a sequential mixed mode mail and telephone survey conducted in Olmsted County, MN. Respondents (regardless of authorization status) were linked to the Rochester Epidemiology Project (REP), the medical record system for health care providers in Olmsted County. The REP provided data on gender, age, race, health status (co-morbid conditions), and health care utilization (ER admission, hospital admission, clinical office visits and procedures). Authorizers (n=1357) are compared to non-authorizers (n=217) with respect to these demographic and clinical characteristics. RESULTS: 86.2% of respondents authorized data linkage. Non-authorizers were younger, healthier (lower Charlson score), and less likely to have 3 or more recent clinical office visits. In multivariate analysis, Charlson score was no longer a significant predictor of authorization while an ER visit did predict authorization. CONCLUSIONS: Younger subjects are less likely to authorize data linkages. As such, researchers should be aware of this source of potential bias when analyzing population-based linked survey and administrative data. The presence of bias with respect to health care use is more complicated. It is dependent on how the concept is operationalized with heavy clinical users more likely to authorize and those with ER visits less so.
机译：目的：在一项基于一般人群的调查中，将调查与病历数据联系起来的研究，确定授权偏差的程度。方法：通过在明尼苏达州奥尔姆斯特德县进行的顺序混合模式邮件和电话调查确定授权状态（授权数据链接与否）。受访者（无论授权状态如何）都与Rochester流行病学项目（REP）相关联，该项目是Olmsted县医疗服务提供者的病历系统。 REP提供了有关性别，年龄，种族，健康状况（并存病）和医疗保健利用率（急诊室入院，入院，临床就诊和程序）的数据。就这些人口统计和临床特征而言，将授权者（n = 1357）与非授权者（n = 217）进行比较。结果：86.2％的受访者授权进行数据链接。非授权者更年轻，更健康（查尔森评分较低），并且近期进行3次或更多次临床就诊的可能性较小。在多变量分析中，Charlson评分不再是授权的重要预测指标，而ER访视确实可以预测授权。结论：年轻的受试者不太可能授权数据链接。因此，研究人员在分析基于人口的链接调查和行政数据时应意识到这种潜在的偏见。关于卫生保健使用的偏见的存在更加复杂。这取决于该概念如何与更可能授权的重度临床用户和不那么急诊就诊的临床用户一起实施。

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