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首页> 外文期刊>Aphasiology >'That really shouldn't have happened': People with aphasia and their spouses narrate adverse events in hospital
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'That really shouldn't have happened': People with aphasia and their spouses narrate adverse events in hospital

机译：“那真的不应该发生的”：失语症患者及其配偶在医院叙述不良事件

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Background: Patients with communication disability are at increased risk of experiencing an adverse event in hospital. Despite forming a particularly vulnerable patient group, little is known about the nature or cause of adverse events experienced by people with aphasia and their spouses in hospital. Aims: This study aimed to: (a) describe the adverse events experienced by people with aphasia and their spouses in hospital, (b) identify the situations, people, events, and outcomes relevant to the adverse events, and (c) identify commonalities in participant stories of adverse events. Methods & Procedures: In this narrative inquiry, ten people with chronic aphasia and their spouses participated in in-depth interviews about the adverse events they experienced or witnessed in hospital. A narrative analysis was used to discover common stories of adverse events and common content themes across the stories of experience. Outcomes & Results: Although a wide variety of adverse event types were identified in the participants' stories, "undesirable events" were among the most common, along with "inappropriate discharge home or inadequate discharge plan". Reliance upon spouses during communicative interactions featured across the stories, with exclusion of spouses from important interactions on the ward representing a barrier to effective communication and a risk for adverse events. Participants suggested strategies for improving the safety of people with aphasia in hospital in the hope of preventing future adverse events in this population. Conclusions: Adverse events occurring in hospital were distressing to participants and often related to the presence of aphasia. Hospital policies should acknowledge the role that spouses have with patients with aphasia and ensure their inclusion to assist in prevention and management of adverse events in hospitalised patients with aphasia. The need for better discharge planning and information should also be recognised as a means of preventing adverse events.
机译：背景：沟通障碍患者在医院发生不良事件的风险增加。尽管形成了特别脆弱的患者群体，但对于失语症患者及其配偶在医院中经历的不良事件的性质或原因知之甚少。目的：本研究旨在：（a）描述失语症患者及其配偶在医院中经历的不良事件，（b）识别与不良事件相关的情况，人员，事件和结果，以及（c）识别共同点在不良事件的参与者故事中。方法和步骤：在本叙述性调查中，十名慢性失语症患者及其配偶参加了关于他们在医院经历或目睹的不良事件的深入访谈。叙事分析用于发现不良事件的常见故事以及体验故事中的常见内容主题。结果与结果：尽管在参与者的故事中发现了各种各样的不良事件类型，但是“不良事件”是最常见的，还有“不适当的出院回家或不充分的出院计划”。在整个故事中，在交流互动过程中依赖配偶，而病房中重要交流中不包括配偶，这代表了有效交流的障碍和发生不良事件的风险。与会者提出了一些策略，旨在改善失语症患者在医院的安全性，以防止将来该人群发生不良事件。结论：医院发生的不良事件使参与者感到痛苦，并且常常与失语症的存在有关。医院政策应承认配偶对失语症患者的作用，并确保他们的包容性有助于预防和处理住院失语症患者的不良事件。还应认识到需要更好的排放计划和信息，以预防不良事件。

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