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首页> 外文期刊>Aphasiology >Consequences of stroke and aphasia according to the ICF domains: Views of Portuguese people with aphasia, family members and professionals
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Consequences of stroke and aphasia according to the ICF domains: Views of Portuguese people with aphasia, family members and professionals

机译：根据ICF领域中风和失语症的后果：葡萄牙失语症患者，家庭成员和专业人员的观点

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Background: Addressing the long-term consequences of stroke is a top 10 research priority, and understanding the views of different stakeholders is essential in designing appropriate patient-centred multidisciplinary rehabilitation.Aims: This study reports on the perspectives of 38 individuals who live with or work with aphasia: people with aphasia (PWA), family members (FM) and friends, and speech and language therapists (SLTs), about its consequences in the daily lives of PWA.Method & Resources: In total, 14 PWA, 14 FM and 10 SLTs participated in the study. All participants were interviewed about the consequences of stroke and aphasia. Small focus groups were used with some participants. In-depth semi-structured interviews were used with other participants. Interviews were carried out in groups or individually in order to accommodate severe aphasic impairments or respondents with fewer years of education. Interviews were video or audio-recorded. Verbal and non-verbal communication was transcribed and analysed qualitatively using content analysis. Data was coded and mapped onto the ICF framework.Outcomes & Results: All three groups reported consequences in Body Functions and Body Structures, primarily in Mental Functions (Specific Mental Functions and Global Mental Functions) and Neuromusculoskeletal and Movement-Related Functions. Within Specific Mental Functions, PWA emphasised Expression of Oral Language, whereas FM and SLTs emphasised Emotional Functions. Within Global Mental Functions, PWA and FM emphasised Energy and Drive Functions, whereas SLTs emphasised Temperament and Personality Functions. Some consequences were shared between PWA and SLTs (Sensory Functions and Pain, and Functions of the Digestive, Metabolic and Endocrine Systems), whilst others were specific to SLTs alone (Voice and Speech Functions, and Cardiovascular, Haematological, Immunological and Respiratory Systems). All three groups reported consequences in Activities and Participation in Major Life Areas; Community, Social and Civic Life; Interpersonal Interactions and Relationships; Communication; and Mobility. Some consequences were shared by PWA and FM (Domestic Life), and others by FM and SLT (Self Care). Consequences in General Tasks and Demands were only described by SLTs and in Learning and Applying Knowledge by PWA. Both PWA and FM reported a general Loss of Autonomy.Conclusions: PWA, FM and SLTs reported a considerable range of stroke and aphasia consequences in the daily life of those who live with it. They were concerned to different degrees with language, physical and emotional changes, and impact on communication, mobility, self-care, relationships, leisure and work. Professionals' practices in Portugal need to be changed in order to consider these findings.
机译：背景：解决中风的长期后果是研究的十大重点，了解不同利益相关者的观点对于设计合适的以患者为中心的多学科康复至关重要。目的：本研究报告了38位与或生活在一起的人的观点与失语症患者一起工作：失语症患者（PWA），家人（FM）和朋友以及言语和语言治疗师（SLTs）对其失眠症的影响方法与资源：总共14次PWA，14次FM 10个SLT参加了该研究。对所有参与者进行了关于中风和失语症后果的访谈。一些参与者使用了小型焦点小组。与其他参与者进行了深入的半结构化访谈。为了适应严重的失语症患者或受教育年限较短的受访者，进行了小组或单独访谈。采访以视频或音频记录。使用内容分析对语言和非语言交流进行转录和定性分析。数据被编码并映射到ICF框架上。结果与结果：所有这三个小组均报告了身体功能和身体结构方面的后果，主要是心理功能（特定心理功能和整体心理功能）以及神经肌肉骨骼和运动相关功能。在特定的心理功能中，PWA强调口语表达，而FM和SLT则强调情感功能。在全球心理功能中，PWA和FM强调能量和驱动功能，而SLT则强调气质和人格功能。 PWA和SLT之间存在一些后果（感觉功能和疼痛以及消化系统，代谢系统和内分泌系统的功能），而另一些后果仅针对SLT（语音和语音功能以及心血管，血液，血液，免疫和呼吸系统）。三个小组均报告了在主要生命领域的活动和参与的后果;社区，社会和公民生活;人际互动和关系;通讯;和流动性。 PWA和FM（家庭生活）共同承担一些后果，而FM和SLT（自我保健）则承担其他后果。 SLT仅描述了一般任务和需求中的后果，PWA仅描述了学习和应用知识中的后果。 PWA和FM都报告了总体的自主性丧失。结论：PWA，FM和SLTs报告了在与之相伴的人们的日常生活中中风和失语症的严重后果。他们在不同程度上关注语言，身体和情感的变化，以及对沟通，流动性，自我保健，人际关系，休闲和工作的影响。为了考虑这些发现，需要改变葡萄牙专业人员的做法。

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