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Researcher and Institutional Review Board Chair Perspectives on Incidental Findings in Genomic Research

机译：研究人员和机构审查委员会主席观点在基因组偶然发现研究

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Aims: Genomic research can produce findings unrelated to a study's aims. The purpose of this study was to examine researcher and Institutional Review Board (IRB) chair perspectives on genomic incidental findings (GIFs). Methods: Nineteen genomic researchers and 34 IRB chairs from 42 institutions participated in semi-structured telephone interviews. Researchers and chairs described GIFs within their respective roles. Few had direct experience with disclosure of GIFs. Researchers favored policies where a case by case determination regarding whether GIF disclosure would be offered after discovery, whereas IRB chairs preferred policies where procedures for disclosure would be determined prior to approval of the research. Conclusions: Researcher and IRB chair perspectives on management of GIFs overlap, but each group provides a unique perspective on decisions regarding disclosure of GIFs in research. Engagement of both groups is essential in efforts to provide guidance for researchers and IRBs regarding disclosure of GIFs in research.
机译：目的:基因研究可以产生结果不相关的一项研究的目标。研究旨在检验人员和机构审查委员会(IRB)椅子观点基因组偶然的发现(gif)。基因组研究人员和34 IRB椅子从42机构参与半结构化电话面试。gif在描述各自的角色。与披露gif直接经验。研究人员青睐的政策通过案件的地方确定关于GIF是否披露将提供后发现,而IRB吗椅子首选策略,过程信息披露将之前批准决定的研究。椅子的角度管理gif重叠,但每个小组提供了一个独特的视角决策有关信息披露的gif研究。在努力为研究人员提供指导和irb披露的gif研究。

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