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首页> 外文期刊>Genetic testing and molecular biomarkers >Returning Results: Let's Be Honest!
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Returning Results: Let's Be Honest!

机译：返回结果:老实说!

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摘要

Biobank research has the potential to return results that could have beneficial and even life-saving consequences for participants. This possibility raises some important questions, not only about the ethical duty to return results within a research setting, but also about participants' right to refuse results and researchers' responsibility to respect that choice. This article argues in favor of adopting a return-of-results policy that limits participants' ability to refuse clinically relevant and actionable results. We state that biobanks should allow donors only if they are aware of and agree to this return policy. If they do not agree to this, they retain the option not to participate in the biobank research. The aim of this article is to discuss the practical and ethical reasons in favor of this return-of-result policy and, thus, to underline the importance of "honesty'' in biobanking regulations.
机译：生物研究有可能返回结果甚至可能有益给参与者拯救生命的后果。的可能性提出了一些重要的问题,而不是只有道德义务返回结果在研究环境中,但也有关拒绝结果和参与者的权利研究者的责任尊重选择。return-of-results政策限制参与者拒绝临床能力相关的和可操作的结果。只有他们是生物银行应该允许捐赠者知道并同意退货政策。不同意这一点,他们仍然选择不呢参与生物研究。本文旨在讨论实际的和道德理由赞成这return-of-result政策,因此,要强调的重要性“诚实”在生物规则。

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