Assessing the quality of life of children with sickle cell anaemia using self-, parent-proxy, and health care professional-proxy reports

Constantinou Christina; Payne Nicola; Inusa Baba

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Assessing the quality of life of children with sickle cell anaemia using self-, parent-proxy, and health care professional-proxy reports

机译：使用自我，父母代理和医疗保健专业代理报告评估镰状细胞性贫血儿童的生活质量

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ObjectivesThe quality of life (QoL) of children with sickle cell anaemia (SCA) in the United Kingdom has not been examined, and a discrepancy measure based on Gap theory has rarely been used. This study investigated whether (1) child self-reports of QoL using a discrepancy measure (the Generic Children's QoL Measure; GCQ) are lower than those from healthy children, (2) proxy reports from parents and health care professionals are lower than child self-reports, and (3) demographic and disease severity indicators are related to QoL.

机译：目的尚未对英国镰状细胞性贫血（SCA）儿童的生活质量（QoL）进行检查，并且很少使用基于Gap理论的差异测量方法。这项研究调查了（1）是否使用差异度量（通用儿童的QoL度量; GCQ）来衡量儿童的QoL自我报告是否低于健康儿童的QoL;（2）父母和医疗保健专业人员的代理报告是否低于儿童自我-报告，以及（3）人口统计和疾病严重程度指标与QoL相关。

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《British journal of health psychology》 |2015年第2期|共15页
作者
Constantinou Christina; Payne Nicola; Inusa Baba;
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正文语种 eng
中图分类医学心理学、病理心理学;
关键词
paediatric; sickle cell anaemia; quality of life; gap theory; disease severity;

机译：儿科;镰状细胞性贫血;生活质量;差距理论;疾病严重程度;

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1. Assessing the quality of life of children with sickle cell anaemia using self-, parent-proxy, and health care professional-proxy reports [J] . Constantinou Christina, Payne Nicola, Inusa Baba British journal of health psychology . 2015,第Pta2期

机译：使用自我，父母代理和医疗保健专业代理报告评估镰状细胞性贫血儿童的生活质量
2. Agreement of child and parent-proxy reported health-related quality of life in children with mental disorder [J] . Oltean Irina I., Ferro Mark A. Quality of life research: An international journal of quality of life aspects of treatment, care and rehabilitation . 2019,第3期

机译：儿童协议和亲本委员会报告了精神障碍的儿童与健康相关的生活质量
3. The effect of parental mental health on proxy reports of health-related quality of life in children with sickle cell disease. [J] . Panepinto JA, Hoffmann RG, Pajewski NM Pediatric blood & cancer . 2010,第4期

机译：父母心理健康对镰状细胞病患儿健康相关生活质量的替代报告的影响。
4. An mHealth hybrid app for self-reporting pain measures for sickle cell disease [C] . Kevin A. Gary, Pooja Rallabhandi, Elizabeth Walek, 2016 IEEE Healthcare Innovation Point-Of-Care Technologies Conference . 2016

机译：一个mHealth混合应用程序，用于自我报告镰状细胞疾病的疼痛措施
5. Assessing the quality of behavioral health care and health plans using consumer reports and ratings. [D] . Eselius, Laura L. 2004

机译：使用消费者报告和评级评估行为健康护理和健康计划的质量。
6. Predicting healthcare utilization for children with respiratory insufficiency using parent-proxy ratings of children’s health-related quality of life [O] . Angie Mae Rodday, Robert J Graham, Ruth Ann Weidner, -1

机译：通过父母对儿童健康相关生活质量的评定来预测呼吸功能不全儿童的医疗保健利用率
7. Assessing the quality of life of children with sickle cell anaemia using self-, parent-proxy and healthcare professional-proxy reports [O] . Constantinou, Christina, Payne, Nicola, Inusa, Baba 2015

机译：使用自我，父母代理和医疗保健专业代理报告评估镰状细胞性贫血儿童的生活质量
8. Framework for Assessing Quality Indicators for Cancer Care at the End of Life. Effective Health Care Program Research Report No. 23 [R] . Seow, H., Snyder, C. F., Mularski, R. A., 2010

机译：评估癌症治疗终身质量指标的框架。有效的医疗保健计划研究报告第23号

Assessing the quality of life of children with sickle cell anaemia using self-, parent-proxy, and health care professional-proxy reports

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