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Information in dementia care: sense making and a public health direction for the UK?

机译:痴呆症护理中的信息:英国的理性认识和公共卫生方向?

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Providing information is a core focus of policy and practice in dementia care. Information is a vehicle through which people can be enabled or disabled, so it is essential that we ensure that information is available in a way that is accessible and relevant for people with dementia and that it enables personal aspiration and collective identity to be advanced in a way that is to the benefit of those living with dementia. People with dementia need information to support autonomy in making decisions and in acting on those decisions. Information must be provided in a way that is appropriate to the individual and to achieve that requires knowledge of the needs of that individual. However, maintaining autonomy includes, but involves much more than, the provision of information - others need to listen and hear their views and be prepared to act on them. As professionals, we must be aware that the (dementia) information we provide may disrupt the biographical narrative that people with dementia value. Thus, a person-centred approach encourages the sharing of knowledge and information. The (mis)use of information also impacts on the way that society disables, discriminates and applies barriers against people with disability.
机译:提供信息是痴呆症护理政策和实践的核心重点。信息是使人们能够被启用或禁用的工具,因此,至关重要的是,我们确保以对痴呆症患者可用和相关的方式提供信息,并确保在个人中提高个人愿望和集体身份。这对痴呆症患者有利。痴呆症患者需要信息来支持自主权,以制定决策和采取行动。必须以适合个人的方式提供信息,并且要实现此目的就需要了解该个人的需求。但是,保持自主权不仅包括提供信息,还包括更多的内容-其他人需要听取和听取他们的意见,并准备对其采取行动。作为专业人员,我们必须意识到,我们提供的(痴呆症)信息可能会破坏具有痴呆症者价值的传记叙述。因此,以人为本的方法鼓励知识和信息的共享。信息的(滥用)使用也会影响社会对残疾人的残障,歧视和施加障碍的方式。

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