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Experiences of long term ongoing structured support in early stage of dementia - A case study

机译：痴呆早期长期持续结构性支持的经验-案例研究

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Background: The prevalence of dementia diseases is increasing worldwide with advancing age and growing populations. In Sweden alone, which currently has a population of approximately 9 million people, there are about 25 000 persons diagnosed each year with a dementia. Consequently, after such a diagnosis, there is a need for support. The recipients of that support include next of kin who seek a variety of information, including potential lifestyle changes and ways of dealing with personality changes in their loved one who has a dementia. Aims and objectives: The aim was to explore four couples experiences in long-term ongoing structured support groups. Design: A single-case study using semi-structured interviews supported by 'diary notes' maintained by each participating couple were used. Method: Semi-structured interviews were analysed using content analysis. Result: Three categories represent the findings across the four cases: Knowledge about the disease, Sense of comfort and support, and, Kinship through shared experiences. One category, Longing for kinship was created exclusively for one of the couples. Viewing the emerging categories from a healthy ageing perspective, both comfort and support and kinship through shared experiences can be considered as components of larger themes of support and social interaction. Conclusions: Findings suggest that structured support groups are a good way to encourage discussions, allow persons with dementia to express themselves and support healthy ageing among partners. Implications for practice: Facilitators, regardless of whether they are social workers or Registered Nurses, should be trained in group processes to enable individuals in a group to communicate and find meaning in their experiences.
机译：背景：随着年龄的增长和人口的增长，痴呆症的患病率在全球范围内呈上升趋势。仅在瑞典，目前人口约为900万人，每年约有25,000人被诊断出患有痴呆症。因此，在这样的诊断之后，需要支持。该支持的接受者包括寻求各种信息的近亲，包括可能的生活方式改变以及他们所爱的患有痴呆症的人的性格改变方式。目的和目标：目的是在长期的结构化支持小组中探索四对夫妻的经历。设计：采用单例研究，使用半结构化访谈，并由每对参与夫妇维持的“日记”支持。方法：采用内容分析法对半结构化访谈进行分析。结果：三个类别代表了这四个案例的发现：关于疾病的知识，舒适感和支持感以及通过共享经验获得的亲属关系。渴望亲属的一个类别是专门为其中一对夫妇创建的。从健康的老龄化角度来看新兴类别，通过共享经验获得的舒适感，支持和亲属关系都可以被视为支持和社会互动的更大主题的组成部分。结论：研究结果表明，有组织的支持小组是鼓励讨论，让痴呆症患者表达自己并支持伙伴之间健康老龄化的好方法。对实践的影响：主持人，无论他们是社会工作者还是注册护士，都应接受小组培训，以使小组中的个人能够交流并在经验中找到意义。

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