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首页> 外文期刊>International psychogeriatrics >Planning for tomorrow whilst living for today: the views of people with dementia and their families on advance care planning
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Planning for tomorrow whilst living for today: the views of people with dementia and their families on advance care planning

机译：为明天而为今天而计划：痴呆症患者及其家人对预先护理计划的看法

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Background: Advance care planning (ACP) is increasingly prominent in many countries; however, the evidence base for its acceptability and effectiveness is limited especially in conditions where cognition is impaired, as in dementia.Method: This qualitative study used semi-structured interviews with people with mild to moderate dementia in = 17) and family carers (n = 29) to investigate their views about planning for their future generally and ACP specifically.Results: People with dementia and their families make a number of plans for the future. Most people undertook practical, personal, financial, and legal planning. However participants did not make formal advance care plans with the exception of appointing someone to manage their financial affairs. Five barriers to undertaking ACP were identified: lack of knowledge and awareness, difficulty in finding the right time, a preference for informal plans over written documentation, constraints on choice around future care, and lack of support to make choices about future healthcare.Conclusions: Health and social care professionals can build on people's preferences for informal planning by exploring the assumptions underlying them, providing information about the possible illness trajectory and discussing the options of care available. Health and social care professionals also have a role to play in highlighting the aspects of ACP which seem to be most relevant to the wishes and aspirations of people with dementia.
机译：背景：在许多国家，预先护理计划（ACP）越来越重要。然而，其可接受性和有效性的证据基础有限，尤其是在认知能力受损的情况下，例如痴呆症。方法：该定性研究采用半结构化访谈方式，对轻度至中度痴呆症患者（= 17）和家庭照顾者（n = 29）调查他们对总体规划，特别是对ACP的规划的看法。结果：痴呆症患者及其家人制定了许多未来规划。大多数人都进行了实际的，个人的，财务的和法律的计划。但是，参与者没有制定正式的预先护理计划，只有任命某人来管理其财务事务。确定了进行ACP的五个障碍：缺乏知识和意识，难以找到合适的时间，对非正式计划的偏好超过书面文件，对未来医疗选择的限制以及对未来医疗选择的支持不足。卫生和社会护理专业人员可以通过探索人们潜在的假设，提供有关可能的疾病轨迹的信息并讨论可用的护理方案，来建立人们对非正式计划的偏好。卫生和社会护理专业人员在强调ACP方面似乎也可以发挥作用，这些方面似乎与痴呆症患者的意愿和愿望最相关。

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