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首页> 外文期刊>International journal of nursing studies >The impact on mothers of bringing up a child with intellectual disabilities: a cross-cultural study.
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The impact on mothers of bringing up a child with intellectual disabilities: a cross-cultural study.

机译：抚养智障儿童对母亲的影响：跨文化研究。

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BACKGROUND: Most research into the impact on mothers of having a child with an intellectual disability has been done in Western cultures. These mothers are at increased risk of stress, along with poorer health and weakened family relationships. Nurses are well placed to support these mothers. OBJECTIVES: (1) To describe across three different cultures-Irish, Taiwanese and Jordanian-the inter-relationships among three indicators of maternal well-being. (2) To identify the coping strategies of mothers and the professional and informal supports available to them. (3) To identify the variables that have a negative impact on maternal well-being and possible moderating influences on them. DESIGN: A survey approach with three groups of self-selected mothers. PARTICIPANTS: The characteristics of the child determined the inclusion criteria; namely aged 5-18 years with a diagnosis of intellectual disability of such severity that the children attended special schools or centres. In each country, the special services within particular geographical areas were approached and all families known to them were given the opportunity to participate. In all 206 mothers agreed to participate. METHODS: Mothers were interviewed individually at home or in the day centre attended by their child. They completed various rating scales of known reliability and validity. In addition they described in their own words, the impact the child had on their lives and how they coped. RESULTS: In all three countries, mothers experienced poor mental health, increased levels of child-related stress and poorer family functioning which the qualitative data further illuminated. Their child's behaviour problems were a major factor in this. The impacts on mothers' well-being were not alleviated by access to professional supports or use of coping strategies. CONCLUSIONS: Health professionals need to adopt family-centred approaches that embrace the support needs of mothers. Similar strategies would apply across all cultures although they must be responsive to individual need.
机译：背景：大多数关于智力残疾儿童对母亲的影响的研究都是在西方文化中进行的。这些母亲承受压力的风险增加，健康状况较差，家庭关系减弱。护士有能力支持这些母亲。目标：（1）描述三种不同的文化，即爱尔兰，台湾和约旦，这三个孕产妇福祉指标之间的相互关系。 （2）确定母亲的应对策略以及她们可获得的专业和非正式支持。 （3）找出对产妇福祉有负面影响并可能对其产生调节作用的变量。设计：采用三组自选母亲的调查方法。参加者：儿童的特征决定了入选标准;即5-18岁，被诊断出智力残疾的程度如此严重，以致儿童可以上特殊学校或中心。在每个国家，都与特定地理区域内的特殊服务机构接洽，并使他们认识的所有家庭都有参与的机会。共有206位母亲同意参加。方法：在家里或在日间中心分别对母亲进行采访，由他们的孩子参加。他们完成了各种已知信度和效度的评定量表。此外，他们用自己的话描述了孩子对生活的影响以及应对方式。结果：在这三个国家中，母亲的心理健康状况不佳，与儿童有关的压力增加，家庭功能较差，这些定性数据进一步阐明了这一点。他们孩子的行为问题是其中的主要因素。获得专业支持或使用应对策略并不能减轻对母亲幸福感的影响。结论：卫生专业人员需要采取以家庭为中心的方法，以满足母亲的支持需求。相似的策略将适用于所有文化，尽管它们必须响应个人需求。

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