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首页> 外文期刊>Issues in comprehensive pediatric nursing. >PEDIATRIC CHRONIC ILLNESS (CANCER, CYSTIC FIBROSIS) EFFECTS ON WELL SIBLINGS: PARENTS' VOICES
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PEDIATRIC CHRONIC ILLNESS (CANCER, CYSTIC FIBROSIS) EFFECTS ON WELL SIBLINGS: PARENTS' VOICES

机译：小儿慢性疾病（癌症，囊性纤维化）对正常人的影响：父母的声音

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This study is a secondary analysis of data gathered during baseline data collection prior to a cognitive-psychosocial-respite intervention provided in a randomized controlled trial (RCT). Content analysis was used to identify themes in parents' responses to an open-ended item about their perceptions of the effects on siblings of having a brother or sister who has either cancer or cystic fibrosis (CF). Of 91 themes tallied in the cancer group (n = 29), 74.5% reflected negative manifestations of increased risk in siblings, 1.1% no risk; and 24.2%, positive outcomes. Of 53 themes tallied in the CF group (n = 15), the same three categories had 67.9 %, 0%, and 32.1%, respectively. Contemporary life in these families portrayed in parents' descriptions not only validate the rationale for the RCT done, but also suggest the need in ambulatory pediatrics for intervention research on these vulnerable populations.
机译：这项研究是对在随机对照试验（RCT）中提供认知-心理-社交干预之前基线数据收集期间收集的数据的辅助分析。内容分析被用来确定父母对一个开放式项目的回答中的主题，这些主题是关于他们对患有癌症或囊性纤维化（CF）的兄弟姐妹对兄弟姐妹的影响的看法。在癌症组中统计出的91个主题（n = 29）中，有74.5％反映了兄弟姐妹患病风险增加的负面表现，有1.1％没有患病风险;和24.2％的积极结果。 CF组（n = 15）列出的53个主题中，相同的三个类别分别占67.9％，0％和32.1％。在父母的描述中描绘的这些家庭的当代生活不仅证实了进行RCT的理由，而且表明需要流动儿科对这些弱势人群进行干预研究。

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