To tell or not to tell: A systematic review of the disclosure practices of children living with epilepsy and their parents

Benson A.; OToole S.; Lambert V.; Gallagher P.; Shahwan A.; Austin J. K.

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To tell or not to tell: A systematic review of the disclosure practices of children living with epilepsy and their parents

机译：告诉还是不告诉：对癫痫病儿童及其父母的披露做法的系统评价

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Disclosing an epilepsy diagnosis to others is complex due to the condition's largely invisible nature and associated stigma. Despite this, little has been documented in terms of what this process involves for children living with epilepsy (CWE) and their parents. A systematic review was conducted to examine and synthesize evidence pertaining to: (i) the disclosure practices of CWE and their parents, (ii) enablers and barriers for disclosure, (iii) the impact of disclosure practices, and (iv) the relationship between disclosure management and other variables.

机译：由于该病的大部分不可见性质和相关的污名，向其他人披露癫痫诊断很复杂。尽管如此，关于这一过程涉及癫痫病儿童及其父母的研究很少。进行了系统的审查，以审查和综合以下方面的证据：（i）CWE及其父母的披露惯例，（ii）披露的动因和障碍，（iii）披露惯例的影响，以及（iv）披露管理和其他变量。

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来源
《Epilepsy & behavior: E&B》 |2015年第null期|共23页
作者
Benson A.; OToole S.; Lambert V.; Gallagher P.; Shahwan A.; Austin J. K.;
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原文格式 PDF
正文语种 eng
中图分类脑部疾病;
关键词
Epilepsy; Diagnosis disclosure; Concealment; Stigma; Children with epilepsy; Parents;

机译：癫痫;诊断披露;隐瞒;柱头;癫痫患儿;父母;

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1. To tell or not to tell: A systematic review of the disclosure practices of children living with epilepsy and their parents [J] . Benson A., OToole S., Lambert V., Epilepsy & behavior: E&B . 2015,第Null期

机译：告诉还是不告诉：对癫痫病儿童及其父母的披露做法的系统评价
2. A systematic review of quality of life in parents of children with epilepsy [J] . Puka Klajdi, Tavares Tamara P., Anderson Kelly K., Epilepsy & behavior: E&B . 2018,第期

机译：癫痫患儿父母生活质量的系统审查
3. Perspectives and Practice of HIV Disclosure to Children and Adolescents by Health-Care Providers and Caregivers in sub-Saharan Africa: A Systematic Review [J] . Oluyemisi Aderomilehin, Angella Hanciles-Amu, Oluwatobi Ohiole Ozoya Frontiers in Public Health . 2016,第23期

机译：撒哈拉以南非洲卫生保健提供者和看护者向儿童和青少年披露艾滋病毒的观点和实践：系统评价
4. Parent practices and self-perceiwed control: ewidence from parent gender and children's behawioural problems [C] . Benedetto L., legrassia M. European Conference on Developmental Psychology . 2010

机译：父母实践和自我认识控制：来自父母性别和儿童行为问题的证据
5. Parents Can Do It, Too: Developing a Model to Coach Parents in the Use of Music Interventions for Children with ASD (Systematic Review, Conceptual Framework and Limited-Efficacy Study) =Los padres pueden también: Modelo de coaching para el uso de interven [D] . Hernandez Ruiz, Eugenia. 2018

机译：父母也能做到：为自闭症儿童使用音乐干预方法向父母提供指导模型（系统评价，概念框架和功效有限研究）= Los padres puedentambién：干预模型研究
6. Perspectives and Practice of HIV Disclosure to Children and Adolescents by Health-Care Providers and Caregivers in sub-Saharan Africa: A Systematic Review [O] . Oluyemisi Aderomilehin, Angella Hanciles-Amu, Oluwatobi Ohiole Ozoya 2016

机译：撒哈拉以南非洲卫生保健提供者和看护者向儿童和青少年披露艾滋病毒的观点和实践：系统评价
7. Breaking the cycle of invisibility: a mixed methods inquiry into the disclosure behaviours and experiences of children living with epilepsy and their parents [O] . Benson Ailbhe 2016

机译：打破隐形循环：对癫痫患儿及其父母的披露行为和经历的混合方法探讨

To tell or not to tell: A systematic review of the disclosure practices of children living with epilepsy and their parents

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