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首页> 外文期刊>European journal of pediatrics >The administration of rescue medication to children with prolonged acute convulsive seizures in a non-hospital setting: An exploratory survey of healthcare professionals' perspectives
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The administration of rescue medication to children with prolonged acute convulsive seizures in a non-hospital setting: An exploratory survey of healthcare professionals' perspectives

机译：在非医院环境中对患有严重急性惊厥性癫痫发作的儿童进行急救药物的管理：对医疗保健专业人员观点的探索性调查

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Timely administration of rescue medication for prolonged convulsive seizures lasting more than 5 min is necessary to prevent progression to status epilepticus in children. The Practices in Emergency and Rescue Medication for Epilepsy Managed with Community Administered Therapy (PERFECT?) initiative was set up to gain a better understanding of how prolonged convulsive seizures in children are managed when they occur outside of the hospital. We present the findings from an exploratory telephone survey of 128 healthcare professionals (HCPs) (85 pediatric neurologists and neurologists, 28 community pediatricians, and 15 epilepsy nurses) from six EU countries, conducted as part of the PERFECT? initiative. Among HCPs, there was greater awareness of local protocols and lesser awareness of national or international guidelines. HCPs were not very aware of how prolonged convulsive seizures were managed outside of the hospital and had few professional links to schools or other settings where these seizures were most likely to occur. Approximately one third believed that lack of confidence and fear of liability were barriers to caregivers administering treatment in schools, as was insufficient training of caregivers in the wider community on the management of prolonged convulsive seizures. Conclusion: Results of this HCP survey have identified several clear gaps that need to be addressed: clearer guidance that spans all settings of care, greater dissemination of such guidelines across the chain of care, more open communication and better links between HCPs and schools, and systematic training of all relevant caregivers on the appropriate management of prolonged convulsive seizures.
机译：及时治疗抢救药物，以使惊厥持续时间超过5分钟，对于防止儿童发展为癫痫持续状态非常必要。建立了“社区管理疗法管理的癫痫急救药物实践”（PERFECT？）计划，以更好地了解在医院外发生儿童惊厥性癫痫发作的长时程。我们介绍了对来自六个欧盟国家的128位医疗专业人员（HCP）（85位儿科神经病学家和神经病学家，28位社区儿科医师和15位癫痫护士）进行的一项探索性电话调查的结果，作为PERFECT的一部分？倡议。在HCP中，人们对地方规程的意识增强，而对国家或国际准则的意识则减弱。卫生保健人员并不十分了解在医院外如何管理长时间的惊厥性癫痫发作，并且与发生此类癫痫病最可能发生的学校或其他场所的专业联系很少。大约三分之一的人认为，缺乏信心和对责任感的恐惧是学校照顾看护人员的障碍，在更广泛的社区中，对于长期抽搐发作的管理对看护人员的培训不足。结论：这项HCP调查的结果已经确定了几个需要解决的明显空白：更清晰的指导涵盖了所有照护环境，在护理链中更广泛地传播了这些指导方针，更加开放的交流以及HCP与学校之间的更好联系，以及对所有相关照护者进行系统的培训，以适当管理长期的惊厥发作。

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