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首页> 外文期刊>European journal of public health >Burden on family carers and care-related financial strain at the end of life: a cross-national population-based study
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Burden on family carers and care-related financial strain at the end of life: a cross-national population-based study

机译：临终时家庭照顾者和与护理相关的经济负担的负担：一项基于人口的跨国研究

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Background: The rising number of deaths from cancer and other life-limiting illnesses is accompanied by a growing number of family carers who provide long-lasting care, including end-of-life care. This population-based epidemiological study aimed to describe and compare in four European countries the prevalence of and factors associated with physical or emotional overburden and difficulties in covering care-related costs among family carers of people at the end of life. Methods: A cross-national retrospective study was conducted via nationwide representative sentinel networks of general practitioners (GPs). Using a standardized form, GPs in Belgium, The Netherlands, Italy and Spain recorded information on the last 3 months of life of every deceased adult practice patient (1 January 2009-31 December 2010). Sudden deaths were excluded. Results: We studied 4466 deaths. GPs judged family carers of 28% (Belgium), 30% (The Netherlands), 35% (Spain) and 71% (Italy) of patients as physically/emotionally overburdened (P < 0.001). For 8% (Spain), 14% (Belgium), 36% (The Netherlands) and 43% (Italy) patients, GPs reported difficulties in covering care-related costs (P < 0.001). Patients < 85 years of age (Belgium, Italy) had higher odds of having physically/emotionally overburdened family carers and financial burden. Death from non-malignant illness (vs. cancer) (Belgium and Italy) and dying at home compared with other locations (The Netherlands and Italy) were associated with higher odds of difficulties in covering care-related costs. Conclusion: In all countries studied, and particularly in Italy, GPs observed a considerable extent of physical/emotional overburden as well as difficulties in covering care-related costs among family carers of people at the end of life. Implications for health-and social care policies are discussed.
机译：背景：癌症和其他限制生命的疾病导致的死亡人数不断增加，同时，提供长期护理（包括生命终期护理）的家庭护理人员越来越多。这项基于人群的流行病学研究旨在描述和比较四个欧洲国家中身体或情感负担的普遍性和相关因素，以及在生命终结之时照顾家庭护理人员的相关费用方面的困难。方法：通过全国代表性的全科医生岗哨网络（GPs）进行了跨国回顾性研究。比利时，荷兰，意大利和西班牙的全科医生使用标准化表格记录了每位已死亡的成人执业患者最近三个月的生命信息（2009年1月1日至2010年12月31日）。猝死不包括在内。结果：我们研究了4466例死亡。全科医生将家庭护理人员的身体/情绪负担过重（28％（比利时），30％（荷兰），35％（西班牙）和71％（意大利））定为（P <0.001）。对于8％（西班牙），14％（比利时），36％（荷兰）和43％（意大利）的患者，全科医生报告难以支付与医疗相关的费用（P <0.001）。 <85岁的患者（比利时，意大利）在身体/情感上负担过多的家庭照料者和经济负担的几率更高。与其他地区（荷兰和意大利）相比，非恶性疾病（相对于癌症）（比利时和意大利）的死亡和在家中死亡，在支付与医疗相关的费用方面的困难几率更高。结论：在所有研究的国家中，特别是在意大利，全科医生都观察到相当程度的身体/情绪负担，以及难以负担生命终结者的家庭照顾者的护理相关费用。讨论了对健康和社会护理政策的影响。

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