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首页> 外文期刊>European journal of cardiovascular nursing: journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology >On-going palliative care enhances perceived control and patient activation and reduces symptom distress in patients with symptomatic heart failure: A pilot study
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On-going palliative care enhances perceived control and patient activation and reduces symptom distress in patients with symptomatic heart failure: A pilot study

机译：正在进行的姑息治疗可增强有症状心力衰竭患者的知觉控制和患者活化能力，并减少症状困扰

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Introduction: There is a paucity of research about the impact of palliative care (PC) on perceived control (i.e. onesperceived influence over outcomes or events in the environment) and activation (i.e. ability to self-manage) in patientswith symptomatic heart failure (HF). Likewise, little is known about the association between perceived control, activation,and symptom distress in this patient population. We hypothesized that patients with advanced HF who received ongoingPC services (i.e. ≥2 PC consultations) vs no access or a single PC consultation would have greater improvementsin perceived control and activation and greater reductions in symptom distress three months post-discharge for HFexacerbation. Methods: Forty-two patients (average age 53.98.0 years; predominantly male (72%), White (61%) and married (69%))participated in the study. However, only 36 (85.7%) patients completed an outpatient PC consultation of which 29 (69%) patients returned for additional follow-up visits with the PC team. Data on perceived control, activation, and symptomdistress were collected at baseline and three months. Parametric statistical models were applied to draw conclusions. Results: Findings showed that the patients who received ≥2 PC consultations had greater improvements in perceivedcontrol and activation than their counterparts; these increases were associated with greater reductions in symptomdistress. Conclusion: Our findings suggest that on-going PC interventions enhance perceived control and activation in patientswith advanced HF and open up the possibility of planning larger studies to assess the effect of PC on these variables aspossible mediators to improvements in self-management and clinical outcomes.
机译：简介：关于症状性心力衰竭（HF）患者的姑息治疗（PC）对知觉控制（即对环境中的结局或事件的感知影响）和激活（即自我管理能力）的影响的研究很少。同样，对于该患者人群中知觉控制，激活和症状困扰之间的关联知之甚少。我们假设，接受持续性PC服务（即≥2次PC咨询）而不进行或仅进行一次PC咨询的晚期HF患者，在出院后HF加重三个月后，其感觉控制和激活将得到更大的改善，症状困扰也将大大减少。方法：42例患者（平均年龄53.98.0岁;主要为男性（72％），白人（61％）和已婚（69％））参加了研究。但是，只有36（85.7％）位患者完成了门诊PC咨询，其中29位（69％）患者返回了PC团队进行进一步的随访。在基线和三个月时收集有关知觉控制，激活和症状困扰的数据。应用参数统计模型得出结论。结果：研究结果表明，接受≥2次PC咨询的患者比对照组的患者在感知控制和激活方面有更大的改善;这些增加与症状困扰的减少更多有关。结论：我们的研究结果表明，正在进行的PC干预措施可增强晚期HF患者的知觉控制和激活能力，并开辟了计划进行较大规模研究以评估PC对这些变量的影响的可能性，这些介质可能会改善自我管理和临床疗效。

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