Sharing Decision Making (Without Sharing a Religion)-Despite many clinicians' hesitation to go there, patients' religious preferences can be genuinely engaged in the application of clinical genetics.

Joseph B. Fanning

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Sharing Decision Making (Without Sharing a Religion)-Despite many clinicians' hesitation to go there, patients' religious preferences can be genuinely engaged in the application of clinical genetics.

机译：共享决策（不共享宗教）-尽管许多临床医生不愿去那里，但患者的宗教偏好可以真正地参与临床遗传学的应用。

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In a recent issue of Pediatrics, a girl, diagnosed prenatally with triso-my 18 and complex cardiac defects, raised ethical concerns for providers and parents about how to best care for her. The parents asked that all treatment offerings exclude considerations of the child's genetic profile: As parents, our challenge was to uphold our firm conviction that decisions regarding life and death are the sole province of our Maker while at the same time respecting the feelings and consciences of those who would be caring for our daughter (and loving those care providers as well). We believe that the knowledge and skills of the medical staff are a gift of God, and should be used in the furtherance of life, not in its destruction.1

机译：在最近出版的《儿科学》杂志上，一个女孩在出生前被诊断出患有18三体综合征和复杂的心脏缺陷，这对提供者和父母提出了如何最好地照顾她的伦理问题。父母要求所有治疗方案均不考虑儿童的遗传特征：作为父母，我们的挑战是坚持我们坚定的信念，即关于生死的决定是制造者的唯一责任，同时尊重儿童的情感和良心。那些会照顾我们女儿的人（也爱那些护理人员）。我们认为，医务人员的知识和技能是上帝的恩赐，应该用于促进生命，而不是用于破坏生命。1

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《Genewatch :》 |2013年第4期|共3页
作者
Joseph B. Fanning;
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正文语种 eng
中图分类遗传学;
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1. Sharing Decision Making (Without Sharing a Religion)-Despite many clinicians' hesitation to go there, patients' religious preferences can be genuinely engaged in the application of clinical genetics. [J] . Joseph B. Fanning Genewatch : . 2013,第4期

机译：共享决策（不共享宗教）-尽管许多临床医生不愿去那里，但患者的宗教偏好可以真正地参与临床遗传学的应用。
2. Shared decision making in type 2 diabetes with a support decision tool that takes into account clinical factors, the intensity of treatment and patient preferences: design of a cluster randomised (OPTIMAL) trial [J] . Henk den Ouden, Rimke C Vos, Carla Reidsma, BMC Family Practice . 2015,第1期

机译：使用支持决策工具在2型糖尿病中进行共同决策，该决策工具考虑了临床因素，治疗强度和患者喜好：一项整群随机（OPTIMAL）试验设计
3. Developing a two-sided intervention to facilitate shared decision-making in haemophilia: decision boxes for clinicians and patient decision aids for patients [J] . Athale A., Giguere A., Barbara A., Haemophilia: the official journal of the World Federation of Hemophilia . 2014,第6期

机译：开发一种双向干预措施，以促进血友病患者的共同决策：临床医生的决策框和患者的患者决策辅助工具
4. From Decision to Shared-Decision: Introducing Patients' Preferences in Clinical Decision Analysis - A Case Study in Thromboembolic Risk Prevention [C] . Lucia Sacchi, Carla Rognoni, Stefania Rubrichi, Conference on artificial intelligence in medicine . 2013

机译：从决策到共同决策：在临床决策分析中介绍患者的偏好-血栓栓塞风险预防的案例研究
5. Assessing the adoption of shared decision making using decision aids among urologists and prostate cancer patients. [D] . Adsul, Prajakta. 2014

机译：使用泌尿科医师和前列腺癌患者之间的决策辅助工具评估采用共享决策的情况。
6. Shared decision making in type 2 diabetes with a support decision tool that takes into account clinical factors the intensity of treatment and patient preferences: design of a cluster randomised (OPTIMAL) trial [O] . Henk den Ouden, Rimke C Vos, Carla Reidsma, 2015

机译：使用支持决策工具在2型糖尿病中进行共同决策该决策工具应考虑到临床因素治疗强度和患者喜好：一项整群随机（OPTIMAL）试验设计
7. Patients' and clinicians' preferences in adjuvant treatment for high-risk endometrial cancer: Implications for shared decision making [O] . Cathalijne C.B. Post, Jan Willem M. Mens, Marie A.D. Haverkort, 2021

机译：患者和临床医生对高危子宫内膜癌的佐剂治疗的偏好：对共享决策的影响
8. RxSafe: Shared Medication Management and Decision Support for Rural Clinicians: 09/01/07 - 08/31/11. [R] . Gorman, P. N. 2016

机译：Rxsafe：农村临床医生的共享药物管理和决策支持：09/01/07 - 08/31/11。

Sharing Decision Making (Without Sharing a Religion)-Despite many clinicians' hesitation to go there, patients' religious preferences can be genuinely engaged in the application of clinical genetics.

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