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首页> 外文期刊>Genetics in medicine >Multimedia messages in genetics: design, development, and evaluation of a computer-based instructional resource for secondary school students in a Tay Sachs disease carrier screening program.
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Multimedia messages in genetics: design, development, and evaluation of a computer-based instructional resource for secondary school students in a Tay Sachs disease carrier screening program.

机译：遗传学中的多媒体消息：设计，开发和评估Tay Sachs疾病携带者筛查计划的中学生基于计算机的教学资源。

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PURPOSE: Tay Sachs disease is a recessively inherited neurodegenerative disorder, for which carrier screening programs exist worldwide. Education for those offered a screening test is essential in facilitating informed decision-making. In Melbourne, Australia, we have designed, developed, and evaluated a computer-based instructional resource for use in the Tay Sachs disease carrier screening program for secondary school students attending Jewish schools. The resource entitled "Genetics in the Community: Tay Sachs disease" was designed on a platform of educational learning theory. METHODS: The development of the resource included formative evaluation using qualitative data analysis supported by descriptive quantitative data. The final resource was evaluated within the screening program and compared with the standard oral presentation using a questionnaire. Knowledge outcomes were measured both before and after either of the educational formats. RESULTS: Data from the formative evaluation were used to refine the content and functionality of the final resource. The questionnaire evaluation of 302 students over two years showed the multimedia resource to be equally effective as an oral educational presentation in facilitating participants' knowledge construction. CONCLUSION: The resource offers a large number of potential benefits, which are not limited to the Tay Sachs disease carrier screening program setting, such as delivery of a consistent educational message, short delivery time, and minimum financial and resource commitment. This article outlines the value of considering educational theory and describes the process of multimedia development providing a framework that may be of value when designing genetics multimedia resources in general.
机译：目的：Tay Sachs病是一种隐性遗传的神经退行性疾病，全球范围内都有针对其的携带者筛查计划。对提供筛查测试的人员的教育对于促进明智的决策至关重要。在澳大利亚墨尔本，我们已经设计，开发和评估了一种基于计算机的教学资源，该资源可用于针对在犹太学校就读的中学生的泰斯疾病携带者筛查计划。在教育学习理论的平台上设计了名为“社区遗传学：泰萨克斯病”的资源。方法：资源的开发包括使用描述性定量数据支持的定性数据分析的形成性评估。在筛选程序中评估了最终资源，并使用问卷将其与标准口头陈述进行了比较。在两种教育形式之前和之后都测量知识成果。结果：来自形成性评估的数据被用于完善最终资源的内容和功能。两年中对302名学生进行的问卷调查评估显示，多媒体资源在促进参与者的知识建设方面与口头教育演示同样有效。结论：该资源提供了许多潜在的好处，而不仅限于Tay Sachs疾病携带者筛查计划的设置，例如提供一致的教育信息，交付时间短以及最小的财务和资源投入。本文概述了考虑教育理论的价值，并描述了多媒体发展的过程，该过程提供了一个在设计遗传学多媒体资源时可能有价值的框架。

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