Influence of meteorological data on sun tolerance in patients with erythropoietic protoporphyria in France

de Bataille S.; Dutartre H.; Puy H.; Deybach J. -C.; Gouya L.; Raffray E.; Pithon M.; Stalder J. -F.; Nguyen J. -M.; Barbarot S.

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Influence of meteorological data on sun tolerance in patients with erythropoietic protoporphyria in France

机译：气象数据对法国红细胞生成性原卟啉病患者耐太阳性的影响

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Background Erythropoietic protoporphyria (EPP) is a rare metabolic disorder, char acterized by photosensitivity, caused by errors of the haem biosynthetic pathway. Avoidance of sun exposure is recommended; however, some patients suggested a paradoxical improvement of symptoms when they move to sunny areas. Objectives In a national French study, we sought to investigate the influence of sun exposure on EPP symptoms.

机译：背景促红细胞生成原卟啉症（EPP）是一种罕见的代谢紊乱，由血红素生物合成途径的错误引起，具有光敏性。建议避免阳光直射;但是，有些患者建议在转移到阳光充足的地方时症状会自相矛盾。目的在一项法国国家研究中，我们试图研究日晒对EPP症状的影响。

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《British Journal of Dermatology》 |2016年第4期|共8页
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de Bataille S.; Dutartre H.; Puy H.; Deybach J. -C.; Gouya L.; Raffray E.; Pithon M.; Stalder J. -F.; Nguyen J. -M.; Barbarot S.;
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正文语种 eng
中图分类皮肤病学与性病学;
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1. Influence of meteorological data on sun tolerance in patients with erythropoietic protoporphyria in France [J] . de Bataille S., Dutartre H., Puy H., British Journal of Dermatology . 2016,第4期

机译：气象数据对法国红细胞生成性原卟啉病患者耐太阳性的影响
2. Excessive erythrocyte PPIX influences the hematologic status and iron metabolism in patients with dominant erythropoietic protoporphyria. [J] . Delaby C, Lyoumi S, Ducamp S, Cellular and molecular biology . 2009,第1期

机译：过量的红血球PPIX影响占优势的红细胞原卟啉病患者的血液学状况和铁代谢。
3. IMPACT OF HYPERGLYCEMIA AND HYPOINSULINEMIA AT 1-HOUR OF AN ORAL GLUCOSE TOLERANCE TEST ON CLINICAL DECLINE (FEV1 AND BMI) IN CANADIAN AND FRENCH CYSTIC FIBROSIS ADULT PATIENTS: A GLYC-ONE DATABASE STUDY [J] . Revnaud Q., Boudreau V, Denis A., Pediatric Pulmonology . 2018,第Suppla2期

机译：高血糖和低血压血症血症在加拿大和法国囊性纤维化成年患者临床下降（FEV1和BMI）口服葡萄糖耐量试验中的1小时的影响：GLYC-ONE数据库研究
4. Clinical Diagnosis of Erythropoietic Protoporphyria using Tandem Mass Spectrometry [C] . John R. Choiniere, Frantisek Turecek, Michael Gelb, American Society for Mass Spectrometry Conference on Mass Spectrometry and Allied Topics . 2012

机译：使用串联质谱法的促红细胞产物临床诊断
5. Parents' Perspectives on Erythropoietic Protoporphyria: A Qualitative Study. [D] . Go, Allysa Marie Mantala. 2016

机译：父母对促红细胞原卟啉症的观点：定性研究。
6. Increased phototoxic burn tolerance time and quality of life in patients with erythropoietic protoporphyria treated with afamelanotide – a three years observational study [O] . Jasmin Barman-Aksözen, Michèle Nydegger, Xiaoye Schneider-Yin, 2020

机译：用AFMELANOTIDE治疗的促红细胞产态蛋白患者增加光毒性燃烧耐受时间和生活质量 - 三年观察研究
7. Increased phototoxic burn tolerance time and quality of life in patients with erythropoietic protoporphyria treated with afamelanotide – a three years observational study [O] . Jasmin Barman-Aksözen, Michèle Nydegger, Xiaoye Schneider-Yin, 2020

机译：用AFMELANOTIDE治疗的促红细胞产态蛋白患者增加光毒性燃烧耐受时间和生活质量 - 三年观察研究

Influence of meteorological data on sun tolerance in patients with erythropoietic protoporphyria in France

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