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Uncovering the values that motivate people in relation to payments for involvement in research

机译：发现激励人们参与研究的薪酬相关价值

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Purpose - The purpose of this paper is to contribute to response to the 2013 health and welfare reform in the UK by looking specifically at how health research stakeholders in the East Midlands perceive reimbursements for their participation in research. Design/methodology/approach - In keeping with the government research agenda, a survey was distributed to patient and public involvement in research volunteers and other stakeholders in the East Midlands region. In total, 251 useful returns were statistically analysed using descriptive and frequency based statistics and factor analysis. Principal Component Analysis and Varimax Rotation with Kaiser Normalisation were used. This was supplemented by thematic analysis of the content of open questions. Findings - 29 per cent of respondents reported experience with payments and/or reimbursement of expenses for participation in research. Three main factors emerged from the exploratory factor analysis indicative of the values that underpin participants motivation to participate in research. These were "as an opportunity for self-development", "volunteering", and "work and market forces". This revealed that local organisations were somewhat out of step with stakeholders motivations. Research limitations/implications - It is a small study, and therefore has limited power to predict. Wider societal factors were not taken into account and may also impinge on the responses given, especially if respondents are dependent on welfare benefits and vulnerable to shifting community attitudes. Practical implications - This study has got practical implications for policy makers, ethics committees, agencies promoting patient and public involvement, and research organisations. It should influence the design of health research, allow systems to be aligned with individual motivation, maximise recruitment to research and enhance the validity of research findings. Social implications - Genuine coproduction will enhance the quality of health and social care research, and will be strengthened by payment systems that respond the ethical position of participants rather than simply organise around welfare benefit regulations. This study also has the potential to influence guidance from major funders of health research. Originality/value - This study offers an unique contribution into a neglected, complex yet significant area of research practice.
机译：目的-本文的目的是通过着眼于东米德兰兹郡的健康研究利益相关者如何看待他们参与研究的报销，为响应英国2013年的健康和福利改革做出贡献。设计/方法/方法-按照政府的研究议程，向东米德兰兹地区的研究志愿者和其他利益相关者的患者和公众参与了调查。使用基于描述性和基于频率的统计数据和因子分析，总共对251个有用的回报进行了统计分析。使用主成分分析和Kaiser归一化的Varimax旋转。对公开问题内容的主题分析对此进行了补充。调查结果-29％的受访者表示有参与研究的付款和/或费用报销经验。探索性因素分析提出了三个主要因素，这些因素表明了支持参与者参与研究动机的价值观。这些是“作为自我发展的机会”，“志愿服务”以及“工作和市场力量”。这表明，当地组织与利益相关者的动机有些不一致。研究局限性/含义-这是一项小型研究，因此预测能力有限。没有考虑到更广泛的社会因素，这也可能影响所给予的回应，尤其是如果受访者依赖福利待遇并且容易受到社区态度转变的影响。实际意义-这项研究对政策制定者，道德委员会，促进患者和公众参与的机构以及研究组织具有实际意义。它应影响健康研究的设计，使系统与个人动机保持一致，最大程度地招募研究人员并增强研究结果的有效性。社会影响-真正的联合生产将提高卫生和社会护理研究的质量，并且通过响应参与者的道德立场的支付系统将得到加强，而不是简单地围绕福利规定来组织。这项研究也有可能影响健康研究主要资助者的指导。原创性/价值-这项研究为被忽视，复杂而重要的研究实践领域做出了独特的贡献。

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