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首页> 外文期刊>Cancer nursing >Adolescents' and young adults' experiences of childhood cancer: Descriptions of daily life 5 years after diagnosis
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Adolescents' and young adults' experiences of childhood cancer: Descriptions of daily life 5 years after diagnosis

机译：青少年的癌症经验：诊断后5年的日常生活描述

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BACKGROUND: Survivors of childhood cancer are a growing population in society. These young people have a high risk of developing chronic health problems with a potential strong impact on their lives. How a childhood cancer experience affects survivors in adolescence has been studied to a limited extent; an increased understanding of this young group is needed to improve follow-up care. OBJECTIVE: The aim of this study was to gain a deeper understanding of how childhood cancer affects the lives of survivors by exploring adolescents' and young adults' views of what it is like living with this experience. METHODS: Fifty-nine 11- to 22-year-olds were interviewed a median of 5 years after a cancer diagnosis (response rate, 66%). Data were collected through telephone interviews and were analyzed using qualitative content analysis techniques. RESULTS: Three groups of informants were identified according to their descriptions of the influence of cancer treatment on their daily life: "feeling like anyone else" (informants who described that the cancer experience had almost no influence on current life) (49%), "feeling almost like others" (those who described some influence) (44%), and "feeling different" (those describing a great influence on current life) (7%). CONCLUSIONS: Most of the adolescents and young adults appear to get along well, although many informants described that life was affected to some extent by having had cancer. IMPLICATIONS FOR PRACTICE: Follow-up care is needed that can identify those young survivors of childhood cancer having trouble with daily life and offer them support to strengthen their resources in managing difficulties in relation to having had cancer.
机译：背景：儿童期癌症的幸存者是社会上不断增长的人口。这些年轻人极有可能发展慢性健康问题，对其生活产生潜在的重大影响。在有限程度上研究了儿童癌症经历如何影响青春期幸存者。需要进一步了解这个年轻群体，以改善后续护理。目的：本研究的目的是通过探索青少年和年轻人对这种经历的感受，来更深入地了解儿童癌症如何影响幸存者的生活。方法：在诊断出癌症后的中位年龄为5年，对59名11至22岁的儿童进行了访谈（答复率为66％）。通过电话采访收集数据，并使用定性内容分析技术进行分析。结果：根据对癌症治疗对其日常生活影响的描述，确定了三类举报人：“感觉像其他人一样”（描述癌症经历对当今生活几乎没有影响的被告）（49％）， “感觉几乎和其他人一样”（描述了某种影响力的人）（44％）和“感觉不同”（描述了对当前生活的巨大影响力的人）（7％）。结论：大多数青少年和年轻人似乎相处融洽，尽管许多线人描述生活受到癌症的影响。实践的意义：需要进行后续护理，以识别那些在日常生活中遇到麻烦的儿童期癌症的年轻幸存者，并为他们提供支持，以加强他们的资源来管理与癌症有关的困难。

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