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首页> 外文期刊>Multiple sclerosis: clinical and laboratory research >Burden and health-related quality of life of Spanish caregivers of persons with multiple sclerosis.
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Burden and health-related quality of life of Spanish caregivers of persons with multiple sclerosis.

机译：多发性硬化症患者的西班牙看护人的负担和与健康相关的生活质量。

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摘要

Little information exists about caregivers of persons with multiple sclerosis (MS). Our aims were to describe the characteristics of a sample of caregivers of persons with MS, assess their perceived burden, health-related quality of life, and investigate factors influencing this burden. We studied 278 caregivers of persons with MS, recruited from a Spanish cross-sectional survey, measuring health-related quality of life by the 36-Item Short-Form Health Survey (SF-36) and burden by the Zarit Caregiver Burden Interview. Of the caregivers, 56.8% were female and their mean age was 50.1 +/- 12.6 years. Their main relationship with the person with MS was spouse/partner (52.9%) and son or daughter (25.9%). Caregiver General Health, Mental Health, Bodily Pain, and Role-emotional Functioning were the most affected dimensions on the SF-36. Multiple regression analysis showed that independent and significant predictors of burden were Role-emotional Functioning and Vitality dimensions SF-36 scores of caregivers, and the Expanded Disability Status Scale scores. The total adjusted variance explained by these variables (adjusted R(2)) was 0.512. Emotional factors and the disability of the person with MS were major predictors of burden. Psychological and social support should be considered to reduce caregiver burden.
机译：关于多发性硬化症（MS）的照护者的信息很少。我们的目的是描述MS照护者样本的特征，评估他们的感知负担，与健康相关的生活质量，并调查影响该负担的因素。我们研究了278名MS照护者，这些照护者来自西班牙的一项横断面调查，通过36项简短健康调查（SF-36）来测量与健康相关的生活质量，并通过Zarit Caregiver Burden访谈进行负担。在看护者中，有56.8％是女性，平均年龄为50.1 +/- 12.6岁。他们与MS患者的主要关系是配偶/伴侣（52.9％）和儿子或女儿（25.9％）。照护者的总体健康，心理健康，身体疼痛和角色情感功能是SF-36上受影响最大的尺寸。多元回归分析表明，负担的独立且重要的预测指标是护理人员的角色情绪功能和生命力维度SF-36得分以及扩展的残疾状况量表得分。这些变量（调整后的R（2））解释的总调整后方差为0.512。情绪因素和MS患者的残疾是负担的主要预测指标。应考虑提供心理和社会支持以减轻护理人员的负担。

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