End-of-Life issues and the patient with renal disease: an evidence-based practice project.

Hopkins DJ; Kott MR; Pirozzi J; Deppoliti D; Pond M; Randolph C; Zajac S; Cote Arsenault D

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End-of-Life issues and the patient with renal disease: an evidence-based practice project.

机译：生命终结问题和肾病患者：循证实践项目。

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End-of-life issues affect everyone at some time. Individuals with chronic illness need to face these issues earlier to ensure their wishes are carried out. Patients with chronic kidney disease (CKD) Stage 5 have only three options: dialysis in its various forms, renal transplant, or death. In some cases, nurses who care for these patients feel they are caught between patients, their families, and the physician(s). Nurses want to help their patients but feel their hands are tied. The authors' evidence-based practice renal project team worked to answer the questions of how nurses can assist patients with end-of-life issues. Do patients with CKD Stage 5 receive enough information on quality of life and end-of-life issues? The evidence showed that nurses are not comfortable discussing end-of-life issues with their patients. In response to these data, several educational sessions designed to give nurses tools needed to develop a comfort level when discussing end-of-life issues with their patients were completed.

机译：寿命终止问题有时会影响每个人。患有慢性疾病的人需要及早面对这些问题，以确保实现自己的愿望。患有慢性肾脏疾病（CKD）的第5期患者只有三种选择：各种形式的透析，肾移植或死亡。在某些情况下，照顾这些患者的护士会感到他们被患者，他们的家人和医生所困扰。护士想帮助他们的病人，但感到双手被绑住了。作者的循证医学肾脏项目团队致力于回答护士如何为临终问题患者提供帮助的问题。 CKD 5期患者是否获得足够的有关生活质量和寿命终止问题的信息？证据表明，护士不愿意与患者讨论临终问题。针对这些数据，完成了一些旨在向护士提供在与患者讨论临终问题时提高舒适度所需工具的教育课程。

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《Nephrology nursing journal: journal of the American Nephrology Nurses’ Association》 |2011年第1期|共5页
作者
Hopkins DJ; Kott MR; Pirozzi J; Deppoliti D; Pond M; Randolph C; Zajac S; Cote Arsenault D;
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中图分类泌尿科学（泌尿生殖系疾病）;
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1. End-of-Life issues and the patient with renal disease: an evidence-based practice project. [J] . Hopkins DJ, Kott MR, Pirozzi J, Nephrology nursing journal: journal of the American Nephrology Nurses’ Association . 2011,第1期

机译：生命终结问题和肾病患者：循证实践项目。
2. A survey of views and practice patterns of dialysis medical directors toward end-of-life decision making for patients with end-stage renal disease [J] . Fung Enrica, Slesnick Nate, Tamura Manjula Kurella, Palliative medicine . 2016,第7期

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3. Disparate outcomes in pediatric peritoneal dialysis patients by gender/race in the End-Stage Renal Disease Clinical Performance Measures project. [J] . Atkinson MA, Neu AM, Fivush BA, Pediatric nephrology: journal of the International Pediatric Nephrology Association . 2008,第8期

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4. The Natural History of Chronic Kidney Disease Revisited-A 72-Month Mayo Health System Hypertension Clinic Practice-Based Research Network Prospective Report on End-Stage Renal Disease and Death Rates in 100 High-Risk Chronic Kidney Disease Patients: A Call for Circumspection [C] . Macaulay A.C. Onuigbo Conference on Peritoneal Dialysis . 2009

机译：慢性肾病的自然历史重新审议-A 72个月的MASO卫生系统高血压诊所的研究网络网络前期肾病和死亡率100个高危慢性肾病患者的死亡率：一个呼吁守则
5. Increasing the Value of End-of-Life Care for End-Stage Renal Disease Patients: The Role of Palliative Care, Advance Directives and Healthcare Value Measurement [D] . Chettiar, Alexis. 2017

机译：增加终末期肾脏疾病患者的临终关怀价值：姑息治疗，预先指示和医疗保健价值衡量的作用
6. A survey of views and practice patterns of dialysis medical directors toward end-of-life decision making for patients with end-stage renal disease [O] . Enrica Fung, Nate Slesnick, Manjula Kurella Tamura, -1

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7. ACC/AHA guidelines for the management of patients with valvular heart disease A report of the American College of Cardiology/American Heart Association Task Force on practice guidelines (Committee on management of patients with valvular heart disease)11When citing this document, the American College of Cardiology and the American Heart Association recommend that the following format be used: Bonow RO, Carabello B, de Leon AC Jr, Edmunds LH Jr, Fedderly BJ, Freed MD, Gaasch WH, McKay CR, Nishimura RA, O’Gara PT, O’Rourke RA, Rahimtoola SH. ACC/AHA guidelines for the management of patients with valvular heart disease: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (Committee on Management of Patients With Valvular Heart Disease). J Am Coll Cardiol.1998;32:1486–588.22Address for reprints: A single reprint of this document (the complete Guidelines) is available by calling 800-253-4636 (US only) or writing the American College of Cardiology, Educational Services, 9111 Old Georgetown Road, Bethesda, MD 20814-1699. Ask for reprint No. 71-0153. To obtain a reprint of the shorter version (Executive Summary and Summary of Recommendations) published in the November 3 issue of Circulation, ask for reprint No. 71-0154. To purchase additional reprints, specify version and reprint number: up to 999 copies, call 800-611-6083 (US only) or fax 413-665-2671; 1000 or more copies, call 214-706-1466, fax 214-691-6342, or E-mail pubauth@heart.org [O] . Bonow RobertO., Carabello Blase, de Leon AntonioC., 1998

机译：ACC / AHA瓣膜性心脏病患者治疗指南美国心脏病学会/美国心脏协会工作组实践指南（瓣膜性心脏病患者治疗委员会）的报告11引用本文件时，美国心脏病学会心脏病学和美国心脏协会建议使用以下格式：Bonow RO，Carabello B，de Leon AC Jr，Edmunds LH Jr，Fedderly BJ，Freed MD，Gaasch WH，McKay CR，Nishimura RA，O'Gara PT，O 'Rourke RA，Rahimtoola SH。 ACC / AHA瓣膜性心脏病患者治疗指南：美国心脏病学会/美国心脏协会实践指南工作组（瓣膜性心脏病患者治疗委员会）的报告。 J Am Coll Cardiol.1998; 32：1486–588.22转载地址：可致电800-253-4636（仅美国）或写信给美国心脏病学会教育服务部，获得本文件的单一转载（完整的准则）。，9111 Old Georgetown Road，Bethesda，MD 20814-1699。要求转载第71-0153号。要获得11月3日发行的Circulation的较短版本（执行摘要和建议摘要）的重印本，请索要第71-0154号重印本。要购买其他重印本，请指定版本和重印编号：最多999份，请致电800-611-6083（仅限美国）或传真413-665-2671；否则请重新发送。 1000或更多副本，请致电214-706-1466，传真214-691-6342或电子邮件pubauth@heart.org

End-of-Life issues and the patient with renal disease: an evidence-based practice project.

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