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首页> 外文期刊>Social science and medicine >Fund my treatment!: A call for ethics-focused social science research into the use of crowdfunding for medical care
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Fund my treatment!: A call for ethics-focused social science research into the use of crowdfunding for medical care

机译：为我的治疗筹集资金！：呼吁以道德为重点的社会科学研究，探讨使用人群筹资进行医疗服务

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摘要

Crowdfunding involves raising money from large groups of individuals, often through the use of websites dedicated to this purpose. Crowdfunding campaigns aimed at raising money to pay for expenses related to receiving medical treatment are receiving increased media attention and there is evidence that medical crowdfunding websites are heavily used. Nonetheless, virtually no scholarly attention has been paid to these medical crowdfunding campaigns and there is no systematic evidence about how widely they are used and for what reasons, and what effects they have on the provision of medical care and individuals' relationships to their health systems. Ethical concerns have been raised in relation to these campaigns, focusing on issues for campaigners and donors such as exposure to fraudulent campaigns, loss of privacy, and fairness in how medical crowdfunding funds are distributed. Medical crowdfunding websites themselves have not been systematically studied, despite their significant influence on how these campaigns are developed and promoted. In this paper, we identify three very broad and pressing ethical questions regarding medical crowdfunding for social scientists to address and offer some preliminary insights into key issues informing future answers to each: Who benefits the most from medical crowdfunding and how does medical crowdfunding affect access to medical care; How does medical crowdfunding affect our understanding of the causes of inadequate access to medical care; and How are campaigner and donor privacy affected by website design? Our observations indicate the need for increased scholarly attention to the ethical and practical effects of medical crowdfunding for campaigners, recipients, donors, and the health system as a whole. (C) 2016 Elsevier Ltd. All rights reserved.
机译：众筹涉及通常通过使用专用于此目的的网站来从大量个人中筹集资金。旨在筹集资金来支付与接受医疗有关的费用的众筹活动正受到越来越多的媒体关注，并且有证据表明，医疗众筹网站被大量使用。但是，实际上没有学者对这些医疗众筹活动给予任何学术关注，也没有系统的证据证明它们的使用范围，原因，对医疗服务的提供以及个人与医疗系统之间的关系有何影响。 。与这些运动有关的伦理问题引起了人们的关注，重点关注运动者和捐助者的问题，例如暴露于欺诈性运动，隐私权的丧失以及医疗众筹资金分配的公平性。尽管医疗众筹网站本身对这些运动的发展和推广有重大影响，但尚未对其进行系统的研究。在本文中，我们确定了有关医疗众筹的三个非常广泛且紧迫的道德问题，社会科学家可以解决这些问题，并就关键问题提供一些初步见解，从而为每个问题提供未来的答案：谁从医疗众筹中受益最大，以及医疗众筹如何影响获取医疗服务的机会医疗;医疗众筹如何影响我们对医疗服务不足的原因的理解;以及竞选者和捐助者的隐私如何受到网站设计的影响？我们的观察表明，需要更多地关注医学众筹对活动者，接受者，捐赠者以及整个卫生系统的伦理和实践影响。 （C）2016 Elsevier Ltd.保留所有权利。

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