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首页> 外文期刊>Social science and medicine >Stigma, fatigue and social breakdown: exploring the impacts of HIV/AIDS on patient and carer well-being in the Caprivi Region, Namibia.
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Stigma, fatigue and social breakdown: exploring the impacts of HIV/AIDS on patient and carer well-being in the Caprivi Region, Namibia.

机译：污名，疲劳和社会崩溃：在纳米比亚的卡普里维地区，探索艾滋病毒/艾滋病对患者和护理人员福祉的影响。

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摘要

It is generally assumed that caring is a substantial burden upon households afflicted by HIV/AIDS. However, as a 'private' household responsibility, little is known about the experiences of either those who provide the care, or those receiving care, despite the fact that the process may extend over several years and may have a greater impact upon the livelihood security and well-being of the household than the actual death of the ill person. Drawing upon data collected through solicited diaries, this paper explores how illness and the daily and long-term duties of caring amongst a sample of households in the Caprivi Region of Namibia impacts upon the physical and psychological well-being of ill people and their carers. While optimism and enhanced well-being were recorded during periods of illness remission, AIDS-related illnesses invariably result in periods of sickness and dependency. This results in disempowerment and lowered self-esteem, and decreased well-being amongst ill people. This paper arguesthat the increasing dependency of the ill person, widespread pressure to maintain household integrity through 'seeing for yourself', i.e. being self-sufficient, or at least contributing to reciprocal support networks, and the stigma attached to HIV/AIDS can result in considerable intra-household tension and breakdown of key social support networks.
机译：通常认为，关爱是受艾滋病毒/艾滋病困扰的家庭的沉重负担。但是，作为“私人”家庭责任，提供护理或接受护理的人的经历知之甚少，尽管这一过程可能会持续数年，并且可能对生计安全产生更大的影响和家庭福祉相比，病人的实际死亡。利用通过征集日记收集的数据，本文探讨了纳米比亚卡普里维地区的样本家庭中的疾病以及日常护理和长期护理如何影响生病者及其照料者的身心健康。虽然在疾病缓解期间记录了乐观和幸福感，但与艾滋病相关的疾病总是导致疾病和依赖期。这导致丧失能力并降低自尊心，并降低了患病人群的幸福感。本文认为，患病者的依赖性增加，通过“自谋生路”（即自给自足或至少有助于相互支持网络）维持家庭完整的广泛压力以及对艾滋病毒/艾滋病的污名化可能导致家庭内部相当紧张，关键的社会支持网络崩溃。

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