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The 'window of opportunity' for death after severe brain injury: Family experiences

机译：严重脑损伤后死亡的“机会之窗”：家庭经历

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This article builds on and develops the emerging bioethics literature on the 'window of opportunity' for allowing death by withholding or withdrawing treatment. Our findings are drawn from in-depth interviews with 26 people (from 14 different families) with severely brain injured relatives. These interviews were specifically selected from a larger study on the basis of interviewees' reports that their relatives would not have wanted to be kept alive in their current condition (e.g. in vegetative or minimally conscious states). Our analysis tracks the decision-making processes that have led to the situation in which life-sustaining treatments continue to be delivered to these patients - maintaining them in a state that some families describe as a 'fate worse than death'. We show how the medico-legal 'window of opportunity' for allowing the patient to die structures family experience and fails to deliver optimal outcomes for patients. We end with some suggestions for change.
机译：本文以“机会之窗”上新兴的生物伦理学文献为基础，并在此基础上加以发展，以通过戒断或撤回治疗而导致死亡。我们的研究结果来自对26名来自14个不同家庭，患有严重脑损伤的亲属的深入访谈。这些访谈是根据受访者的报告（即他们的亲戚不希望在当前状况下保持生计（例如处于植物生长或最低意识状态））而从一项较大的研究中专门选择的。我们的分析跟踪了决策过程，最终导致了继续向这些患者提供维持生命治疗的情况-使他们处于某些家庭形容为“命运比死亡更糟”的状态。我们展示了允许患者死于家庭经验的医学法律法律“机会之窗”如何无法为患者提供最佳结果。最后，我们提出了一些更改建议。

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