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Touching moments: phenomenological sociology and the haptic dimension in the lived experience of motor neurone disease

机译:感动的时刻:运动神经元疾病生活经验的现象学社会学和触觉维度

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摘要

Currently, there is a relative research lacuna in phenomenological research into the lived experience of motor neurone disease. Based on a sociological research project in the UK, involving 42 participants diagnosed with MND, this article explores the potential of a phenomenological sociology for analysing experiences of this drastically life-limiting neurological disorder. Calls have been made for sociological researchers to analyse more fully and deeply the sensory dimension of the lived body, and this article also contributes to this newly developing body of literature. While the social sciences have been accused of a high degree of ocularcentrism, here we take forward the literature by specifically focusing upon the haptic dimension, given that touch - and particularly the loss of key elements of the haptic dimension-emerged as salient in MND patients' accounts. To illustrate the potential of our phenomenologically inspired theoretical perspective, we consider two specific haptic themes: (i) being out of touch: the loss of certain forms of touch within MND and (ii) unwelcome touch by medical staff.
机译:当前,在现象学研究中存在有关运动神经元疾病的实际经验的相对研究空白。基于英国的一项社会学研究项目,涉及42名被诊断患有MND的参与者,本文探讨了一种现象学社会学在分析这种严重限制生命的神经疾病方面的潜力。社会学研究者们呼吁更加全面和深入地分析活体的感觉维度,这篇文章也为这一新兴的文学体做出了贡献。尽管社会科学被指责为高度眼中心主义,但鉴于MND患者的触觉(尤其是触觉维度的关键要素的丧失)表现为显着特征,因此在此我们通过专门关注触觉维度来推进文献研究。的帐户。为了说明我们受现象学启发的理论观点的潜力,我们考虑了两个特定的触觉主题:(i)脱节:MND内某些形式的接触的丧失;(ii)医务人员不受欢迎的接触。

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