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首页> 外文期刊>Supportive care in cancer: official journal of the Multinational Association of Supportive Care in Cancer >A pan-European survey of research in end-of-life cancer care.
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A pan-European survey of research in end-of-life cancer care.

机译：一项对欧洲临终癌症护理研究的调查。

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BACKGROUND: To date, there is no coordinated strategy for end-of-life (EOL) cancer care research in Europe. The PRISMA (Reflecting the Positive Diversities of European Priorities for Research and Measurement in End-of-life Care) project is aiming to develop a programme integrating research and measurement in EOL care. This survey aimed to map and describe present EOL cancer care research in Europe and to identify priorities and barriers. MATERIAL AND METHODS: A questionnaire of 62 questions was developed and 201 researchers in 41 European countries were invited to complete it online in May 2009. An open invitation to participate was posted on the internet. RESULTS: Invited contacts in 36 countries sent 127 replies; eight additional responses came through websites. A total of 127 responses were eligible for analysis. Respondents were 69 male and 58 female, mean age 49 (28-74) years; 85% of the scientific team leaders were physicians. Seventy-one of 127 research groups were located in a teaching hospital or cancer centre. Forty-five percent of the groups had only one to five members and 28% six to ten members. Sixty-three of 92 groups reported specific funding for EOL care research. Seventy-five percent of the groups had published papers in journals with impact factor 10. Forty-four out of 90 groups reported at least one completed Ph.D. in the last 3 years. The most frequently reported active research areas were pain, assessment and measurement tools, and last days of life and quality of death. Very similar areas--last days of life and quality of death, pain, fatigue and cachexia, and assessment and measurement tools--were ranked as the most important research priorities. The most important research barriers were lack of funding, lack of time, and insufficient knowledge/expertise. CONCLUSIONS: Most research groups in EOL care are small. The few large groups (14%) had almost half of the reported publications, and more than half of the current Ph.D. students. There is a lack of a common strategy and coordination in EOL cancer care research and a great need for international collaboration.
机译：背景：迄今为止，欧洲尚无协调的生命终止（EOL）癌症护理研究策略。 PRISMA（反映了生命终结护理研究和测量的欧洲优先重点）项目旨在制定一项将EOL护理研究与测量相结合的计划。这项调查旨在描绘和描述欧洲目前的EOL癌症护理研究，并确定优先事项和障碍。材料和方法：编制了62个问题的调查表，并邀请了41个欧洲国家的201位研究人员于2009年5月在线完成了该调查表。公开参加的邀请被发布在互联网上。结果：来自36个国家的受邀联系人发送了127条回复;通过网站另外收到了八份回复。共有127个响应符合分析条件。受访者为69位男性和58位女性，平均年龄49（28-74）岁;科学团队领导者中有85％是医生。 127个研究小组中的71个位于教学医院或癌症中心。 45％的组只有1-5个成员，而28％的是6-10个成员。 92个小组中有63个小组报告了针对EOL护理研究的特定资金。在过去三年中，有百分之七十五的小组在影响因子 10上。 90个研究小组中有44个报告至少完成了博士学位。在过去的三年中。最活跃的活跃研究领域是疼痛，评估和测量工具以及生命的最后几天和死亡质量。极为相似的领域-生命的最后几天以及死亡，疼痛，疲劳和恶病质以及评估和测量工具的质量-被列为最重要的研究重点。最重要的研究障碍是缺乏资金，时间不足和知识/专长不足。结论：EOL护理的大多数研究小组很小。少数几个大型团体（占14％）拥有近一半的已发表论文，一半以上是目前的博士学位。学生们。 EOL癌症护理研究缺乏共同的策略和协调，非常需要国际合作。

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