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首页> 外文期刊>Supportive care in cancer: official journal of the Multinational Association of Supportive Care in Cancer >Living with cancer and perception of care: Icelandic oncology outpatients, a qualitative study.
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Living with cancer and perception of care: Icelandic oncology outpatients, a qualitative study.

机译：患有癌症和对护理的感知：冰岛肿瘤门诊患者，一项定性研究。

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AIM: This qualitative study was set out to explore oncology outpatient experiences of having cancer, to illuminate coping strategies and to explore perceptions of care and service provided while treated for cancer. MATERIALS AND METHODS: Thirty patients undergoing chemotherapy or radiotherapy were consecutively selected for the study in three oncology outpatient clinics in Iceland; mean age was 55 years. All participants gave written consent but five dropped out of the study. Twenty-five semi-structured single interviews were conducted and analysed using manifest and latent content analysis. RESULTS: The descriptive level of the text could be understood as: (a) getting cancer: alarming experience; (b) coping: balancing life as it was before cancer against present situation to achieve normality; (c) satisfaction: encountering caring behaviour enhances satisfaction and well being. Each of the categories encompassed variation of subcategories. All the categories were summarised in the core category: "Being in the alarming situation of getting cancer evokes a strong need to maintain normality and keep uncertainty at distance with support from caring and sensitive encounters." This reflected patients' overall experiences of being diagnosed with cancer, how they coped and their perception of quality of care while going through treatment. CONCLUSION: Reactions to the diagnosis of cancer indicate strong emotional reactions. A strong will to handle the situation and determination to maintain normality in life was prominent. Establishment of positive patient-health care professional relationships, caring encounters, faith, believing in treatment and support from family was highly valued as support and giving hope.
机译：目的：开展这项定性研究，以探索肿瘤学上癌症患者的门诊经验，阐明应对策略并探索在接受癌症治疗时提供的护理和服务的看法。材料与方法：在冰岛的三个肿瘤门诊中，连续选择了30例接受化学疗法或放射疗法的患者进行研究。平均年龄为55岁。所有参与者均给出了书面同意，但五人退出了研究。使用清单和潜在内容分析进行了25次半结构化单次访谈并进行了分析。结果：该文本的描述性水平可以理解为：（a）患癌症：令人震惊的经历; （b）应对：在癌症之前的生活与目前的状况之间取得平衡，以实现正常; （c）满意度：遇到关爱行为会提高满意度和幸福感。每个类别都包含子类别的变体。所有类别都归纳为核心类别：“处于令人担忧的癌症状况中，强烈需要保持正常状态并在关心和敏感相遇的支持下保持远距离的不确定性。”这反映了患者被诊断出患有癌症的整体经历，他们如何应对以及他们在接受治疗时对护理质量的看法。结论：对癌症诊断的反应表明强烈的情绪反应。强烈的意愿来处理这种情况，并决心保持生活的正常。建立积极的患者保健专业关系，关怀相遇，信仰，相信家庭的治疗和支持是给予支持和给予希望的高度重视。

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