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What happens after a request for euthanasia is refused? Qualitative interviews with patients, relatives and physicians

机译:安乐死申请被拒绝后会怎样?对患者,亲戚和医生的定性访谈

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Objective: Obtaining in-depth information from both patient and physician perspectives about what happens after a request for euthanasia or physician-assisted suicide (EAS) is refused. Methods: In-depth interviews with nine patients whose EAS request was refused and seven physicians of these patients, and with three relatives of patients who had died after a request was refused and four physicians of these patients. Interviews were conducted at least 6 months after the refusal. Results: A wish to die remained in all patients after refusal, although it sometimes diminished. In most cases patient and physician stopped discussing this wish, and none of the physicians had discussed plans for the future with the patient or evaluated the patient's situation after their refusal. Physicians were aware of patients' continued wish to die. Conclusions: Patients who are refused EAS may subsequently be silent about a wish to die without abandoning it. Open communication about wishes to die is important, even outside the context of EAS, because if people feel unable to talk about them, their quality of life may be further diminished. Practice implications: Follow up appointments after refusal could give patients the opportunity to discuss their feelings and physicians to support them.
机译:目的:从患者和医师的角度获取深入的信息,以了解在安乐死或医师协助的自杀(EAS)申请被拒绝后会发生什么情况。方法:对拒绝EAS要求的9名患者和这些患者的7位医生以及拒绝申请后死亡的3名亲属和4位患者的深入访谈。拒绝后至少6个月进行了访谈。结果:拒绝治疗后,所有患者中的死亡愿望仍然存在,尽管有时会减少。在大多数情况下,患者和医师停止讨论此愿望,并且没有医师与患者讨论过未来的计划或在患者拒绝后评估患者的状况。医生意识到患者仍然希望死亡。结论:被拒绝接受EAS的患者可能随后对死亡的愿望保持沉默,而不放弃它。即使在EAS之外,关于死亡的希望的公开交流也很重要,因为如果人们感到无法谈论他们,他们的生活质量可能会进一步下降。实践意义:拒绝后进行后续约会可以使患者有机会讨论自己的感受,并获得医生的支持。

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