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首页> 外文期刊>Pediatrics: Official Publication of the American Academy of Pediatrics >Cystic fibrosis and transition to adult medical care.
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Cystic fibrosis and transition to adult medical care.

机译：囊性纤维化和向成人医疗的过渡。

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Transition of young adults with cystic fibrosis (CF) from pediatric to adult medical care is an important priority, because many patients are living well into their fourth decade, and by 2010 more than half of all people living with CF will be older than 18 years. Transition to adulthood, a developmental process of skill-building in self-management supported by the health system, is important for the successful transfer to adult CF care. The US Cystic Fibrosis Foundation has been proactive in preparing for increasing numbers of young adults in need of specialized adult-oriented care by creating specialized clinical fellowships for physician providers and mandating establishment of adult CF programs. Despite these initiatives, how to best facilitate transition and to define and measure successful outcomes after transfer to adult care remains unclear. Many adults with CF continue to receive care in the pediatric setting, whereas others transfer before being developmentally prepared. In this state-of-the-art review we provide context for the scope of the challenges associated with designing and evaluating health care transition for adolescents and young adults with CF and implications for all youth with special health care needs.
机译：患有囊性纤维化（CF）的年轻人从儿科过渡到成人医疗是一个重要的优先事项，因为许多患者在他们的第四个十年中都生活得很好，到2010年，一半以上的CF患者将年满18岁。过渡到成年期是卫生系统支持的自我管理技能建设的发展过程，对于成功转移到成人CF护理很重要。美国囊性纤维化基金会通过为医师提供者建立专门的临床研究金和强制建立成人CF计划，积极地为越来越多的需要专门面向成人的护理的年轻成年人做准备。尽管采取了这些举措，如何转移到成人护理后如何最好地促进过渡以及定义和衡量成功的结果仍然不清楚。许多患有CF的成年人继续在儿科环境中接受护理，而其他成年人则在发育准备之前就转移了。在此最新的综述中，我们为与设计和评估具有CF的青少年和年轻人的医疗过渡相关的挑战范围提供了背景，并为所有有特殊医疗需求的年轻人带来了影响。

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