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首页> 外文期刊>Pediatrics: Official Publication of the American Academy of Pediatrics >End-of-life care for neonates and infants: the experience and effects of a palliative care consultation service.
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End-of-life care for neonates and infants: the experience and effects of a palliative care consultation service.

机译：新生儿和婴儿的临终关怀：姑息治疗咨询服务的经验和影响。

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OBJECTIVE: Neonates and infants have the highest death rate in the pediatric population, yet there is a paucity of data about their end-of-life care and whether a palliative care service can have an impact on that care. The objective of this study was to describe end-of-life care for infants, including analysis of palliative care consultations conducted in this population. We hypothesized that the palliative care consultations performed had an impact on the infants' end-of-life care. DESIGN: A retrospective chart review using the "End of Life Chart Review" from the Center to Improve Care for the Dying was conducted. The participants were the patients at Children's Hospital of Wisconsin who died at <1 year of age during the 4-year period between January 1, 1994, and December 31, 1997. The patients' place of death, medical interventions performed, and emotionally supportive services provided to families were analyzed. RESULTS: Among the 196 deaths during the study period, 25 (13%) of these infants and families had palliative care consultations. The rate of consultations increased from 5% of the infant deaths in 1994 to 38% of the infant deaths in 1997. Infants of families that received consultations had fewer days in intensive care units, blood draws, central lines, feeding tubes, vasopressor and paralytic drug use, mechanical ventilation, cardiopulmonary resuscitation, and x-rays, and the families had more frequent referrals for chaplains and social services than families that did not have palliative care consultations. CONCLUSIONS: This study describes the end-of-life care that infants and their families received. Fewer medical procedures were performed, and more supportive services were provided to infants and families that had a palliative care consultation. This suggests that palliative care consultation may enhance end-of-life care for newborns.
机译：目的：新生儿和婴儿的死亡率在儿科人群中最高，但关于其临终护理以及姑息治疗服务是否会对这种护理产生影响的数据很少。这项研究的目的是描述婴儿的临终护理，包括对该人群进行的姑息治疗咨询的分析。我们假设进行的姑息治疗会影响婴儿的临终关怀。设计：使用中心的“生命周期图表审查”进行回顾性图表审查，以改善对死者的护理。参加者是威斯康星州儿童医院的患者，这些患者在1994年1月1日至1997年12月31日的4年内在1岁以下死亡。患者的死亡地点，进行的医疗干预和情感支持分析了向家庭提供的服务。结果：在研究期间的196例死亡中，这些婴儿和家庭中有25例（13％）接受了姑息治疗咨询。咨询的比例从1994年婴儿死亡的5％上升到1997年婴儿死亡的38％。接受咨询的家庭的婴儿在重症监护室，抽血，中心管线，饲管，升压药和麻痹的日子减少了药物使用，机械通气，心肺复苏术和X射线检查，与没有姑息治疗咨询的家庭相比，这些家庭转诊牧师和社会服务的频率更高。结论：本研究描述了婴儿及其家庭接受的临终护理。减少了医疗程序，并为接受姑息治疗咨询的婴儿和家庭提供了更多的支持服务。这表明姑息治疗咨询可能会增强新生儿的临终关怀。

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