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首页> 外文期刊>Pediatrics: Official Publication of the American Academy of Pediatrics >Incidental findings of nonparentage: A case for universal nondisclosure
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Incidental findings of nonparentage: A case for universal nondisclosure

机译：非父母身份的偶然发现：普遍不公开的情况

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We advocate for the incorporation of a new clause into the consent forms for pediatric genetic testing that clearly states that any incidental information about parentage will not be revealed, regardless of the result. Using a case of misattributed maternity, we examine both the pro- and antidisclosure arguments. In the absence of arguments that clearly demonstrate irrevocable harm from nondisclosure and against a backdrop of arguments that compellingly highlight the potential for serious harms from disclosing incidental findings of nonparentage, we advocate for a universal, institution-wide policy of nondisclosure. Our proposed policy of universal nondisclosure not only provides a viable solution to the disclosure dilemma but also empowers patients to know what testing is available to them and to seek it out on their own terms, fully informed. With an easily implemented consent change, clinics can take a clear and firm stance in the disclosure debate. As a result, patients will be protected, policy will be widely understood, and cases will be resolved consistently and clearly.
机译：我们主张将新的条款纳入小儿遗传测试的同意书中，明确指出无论结果如何，都不会透露任何有关父母的附带信息。以一个产妇分配错误为例，我们考察了亲披露和反披露的论点。在没有任何论点清楚地表明不公开所带来的不可挽回的损害的情况下，并且在论点强烈强调了披露不育儿的偶然发现可能造成严重损害的可能性的情况下，我们主张在整个机构范围内实行普遍的不公开政策。我们提议的普遍保密政策不仅可以为解决信息披露难题提供可行的解决方案，还可以使患者了解可以进行哪些测试，并根据自己的条件进行充分了解。通过轻松实施同意变更，诊所可以在公开辩论中采取明确而坚定的立场。结果，患者将得到保护，政策将得到广泛理解，案件将得到始终如一和清晰的解决。

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