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首页> 外文期刊>Pediatrics international : >Mothers' depression and health-related quality of life in neuromuscular diseases: role of functional independence level of the children.
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Mothers' depression and health-related quality of life in neuromuscular diseases: role of functional independence level of the children.

机译：母亲在神经肌肉疾病中的抑郁和与健康有关的生活质量：儿童功能独立性水平的作用。

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BACKGROUND: In the literature there have been studies about quality of life of parents who have children with chronic diseases. Most of these studies have focused on the stress of parents of children with neuromuscular disease (NMD), and there was no evidence to support hypothesized relationships between caregiving demands and health-related quality of life (HRQOL). The aim of the present study was therefore to evaluate the relations between maternal depression and HRQOL and functional limitations of the children with NMD. METHODS: Forty children with a diagnosis of NMD and their mothers were included in the study. HRQOL of the mothers was assessed on the Turkish version of the Nottingham Health Profile (NHP); potential cases of depressive illness were identified on Beck Depression Inventory (BDI); and Wee-Functional Independence Measure (Wee-FIM) was used to evaluate of functional independence level of the children. RESULTS: It was found that mean total NHP score of the mothers was moderately correlated with the total FIM score and sphincter control of the child, and weakly correlated with the locomotion of the child (P < 0.001). There was moderate correlation between mothers' social isolation and children's sphincter control, social integration and total Wee-FIM score and a weak correlation between mobility and communication scores (P < 0.001). In contrast there was no correlation between BDI scores of mothers and Wee-FIM scores of children (P > 0.05). CONCLUSION: The functional level of children with NMD is one of the factors that affect the quality of life of mothers.
机译：背景：在文献中，已经有关于患有慢性疾病的孩子的父母的生活质量的研究。这些研究大多数集中在神经肌肉疾病（NMD）患儿父母的压力上，没有证据支持照料需求与健康相关的生活质量（HRQOL）之间的假设关系。因此，本研究的目的是评估孕产妇抑郁与HRQOL与NMD儿童功能受限之间的关系。方法：本研究纳入了40名诊断为NMD的儿童及其母亲。母亲的HRQOL是根据土耳其版的《诺丁汉健康状况》（NHP）进行评估的;在贝克抑郁量表（BDI）中确定了潜在的抑郁症病例;并使用Wee-FIM独立测度（Wee-FIM）评估儿童的功能独立水平。结果：发现母亲的平均NHP总分与孩子的FIM总分和括约肌控制中等相关，而与孩子的运动较弱相关（P <0.001）。母亲的社会隔离与孩子的括约肌控制，社会融合和整体Wee-FIM得分之间存在适度的相关性，而流动性和沟通得分之间的相关性较弱（P <0.001）。相反，母亲的BDI评分与儿童的Wee-FIM评分之间没有相关性（P> 0.05）。结论：NMD患儿的功能水平是影响母亲生活质量的因素之一。

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