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The Googlization of health research: from disruptive innovation to disruptive ethics

机译:卫生研究的一体化:从颠覆性创新到颠覆性伦理

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Consumer-oriented mobile technologies offer new ways of capturing multidimensional health data, and are increasingly seen as facilitators of medical research. This has opened the way for large consumer tech companies, like Apple, Google, Amazon and Facebook, to enter the space of health research, offering new methods for collecting, storing and analyzing health data. While these developments are often portrayed as 'disrupting' research in beneficial ways, they also raise many ethical issues. These can be organized into three clusters: questions concerning the quality of research; privacy/informed consent; and new power asymmetries based on access to data and control over technological infrastructures. I argue that this last cluster, insofar as it may affect future research agendas, deserves more critical attention.
机译:面向消费者的移动技术提供了捕获多维健康数据的新方法,并日益被视为医学研究的促进者。这为苹果,谷歌,亚马逊和Facebook等大型消费技术公司进入健康研究领域开辟了道路,并提供了收集,存储和分析健康数据的新方法。尽管这些进展通常被描述为以有益的方式“破坏”研究,但它们也引发了许多道德问题。这些可以分为三个类别:关于研究质量的问题;关于研究质量的问题。隐私/知情同意;以及基于对数据的访问和对技术基础架构的控制的新的功率不对称。我认为,这最后一个集群可能会影响未来的研究议程,因此应该给予更多的关注。

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