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Does he take Sugar? Moving Beyond the Rhetoric of Compassion

机译:他会吃糖吗?超越同情修辞

摘要

For 20 years, up until the late 1990s, the U.K.'s Radio 4 ran a weekly series called "Does He Take Sugar?" that presented an in-depth treatment of disability. The title of the program refers to when someone asks the carer about sugar instead of directly asking the person who is being offered a hot drink. It captures the sentiment of talking about someone who is disabled in the third person, while in their presence, regardless of whether that person can speak for him- or herself. The program brought attention to this kind of "overlooking" and gave disabled people a voice (it also had a disabled presenter). It did wonders for helping "abled" people realize how to listen, talk to, and engage with disabled people just like anyone else.Likewise, HCI has come from a place where our attempts to help others who are "worse off than us" have often ended up being framed in a similar third-person vein. The tendency has been to develop technological solutions for them based on our understanding of what they need, by providing for a lack of something. This could be technical (e.g., access to the Internet, computers, mobile airtime), a declining ability that comes with age (e.g., sight, looking after oneself, memory), or a physical or mental disability (e.g., autism, depression). While many projects have sensitively and successfully demonstrated how novel technologies can support and enhance people's lives (e.g., [1]), some are fronted with a third-person perspective, asking questions such as, "What technology do they need?" And, mostly, we have designed solutions to compensate and overcome rather than to innovate.Although the wider field of HCI has moved forward in its thinking, with a focus now on ethnographic methods and co-design, here we explicate our growing unease with the rhetoric of compassion that underlies much of our wanting to help people. So although HCI may be more attuned to working with people, there still remains a remnant of "sugar thinking" that we will explore in two areas of researchu2014assisted living and information and communication technologies for development (ICT4D)u2014to illustrate our concerns.As an alternative to focusing on need, we outline an approach that promotes empowerment through technology, enabling other people to become better equipped to the point where they can innovate for themselves. To achieve this, we propose framing HCI research that embraces a rhetoric of engagement. By this we mean talking about, demonstrating, and eventually handing over to people our toolkits, know-how, and technologies so they can decide what to do with them in their own contexts. The people we engage with can be those living in poverty, without access to the Internet, the elderly, the disabled, and so onu2014but also those whose professional role is to teach, care for, and work with them. In so doing, we see our role as HCI researchers to remain as researchers, and to put our efforts into what we are best at and feel comfortable withu2014that is, being inventors, imagineers, and purveyors of new interaction design tools, interfaces, and technologies. We leave the appropriation and adapting of those technologies to the people whose lives they might enhance. We empower them to engage with us, not just in design, but in co-creation and clear articulation of their technology desires.
机译:到1990年代后期为止的20年中,英国的Radio 4电台每周播出一期名为“他要吃糖吗?”的系列节目。提出了对残疾的深入治疗。该程序的标题是指某人向看护人询问糖分,而不是直接问提供热饮的人。它捕获了谈论在第三人称中处于残障状态的某人的感觉,而无论该人是否可以为他或她自己说话。该程序引起了人们对这种“俯视”的注意,并给了残疾人一个声音(它也有一个残疾人演讲者)。它确实帮助了“有能力的”人们意识到如何像其他任何人一样去聆​​听,交谈和与残疾人互动。奇迹般地,HCI来自一个我们试图帮助“比我们更糟的人”的地方。通常最终被陷于类似的第三人称视角。趋势是根据我们对需求的理解,通过提供一些缺少的东西来为他们开发技术解决方案。这可能是技术性的(例如,访问互联网,计算机,移动通话时间),随着年龄而下降的能力(例如,视力,照顾自己,记忆)或身体或精神上的残疾(例如,自闭症,抑郁症) 。尽管许多项目已经敏锐且成功地展示了新颖技术如何支持和改善人们的生活(例如[1]),但有些项目却以第三人称视角面对,提出了诸如“他们需要什么技术?”之类的问题。而且,大多数情况下,我们已经设计了补偿和克服而不是创新的解决方案。尽管HCI的广泛领域已经向前发展,现在着重于人种志方法和共同设计,但在这里我们向我们阐述了人们日益增长的不适感。同情心的言论是我们许多想要帮助人们的基础。因此,尽管人机交互可能更适合与人合作,但仍然存在“糖思想”的遗迹,我们将在两个研究领域中进行探索,即生活和信息通信技术促进发展(ICT4D),以说明我们的关注。作为关注需求的替代方法,我们概述了一种通过技术促进赋权的方法,使其他人可以更好地装备自己,从而可以自己进行创新。为了实现这一目标,我们提出了框架化的人机交互研究,其中包括参与性的言论。我们的意思是谈论,演示并最终将我们的工具包,专有技术和技术交付给人们,以便他们可以根据自己的情况决定如何处理它们。我们与之打交道的人可以是生活在贫困中,无法上网,老人,残疾人等的人,也可以是其专业角色是教学,照料和与他们合作的人。这样一来,我们看到我们作为HCI研究人员的角色将继续保持为研究人员的身份,并将我们的精力投入到我们最擅长的领域并感到满意,即成为新的交互设计工具,界面的发明者,想象者和提供者,和技术。我们将这些技术的分配和调整留给他们可能会改善其生活的人们。我们使他们能够与我们互动,不仅参与设计,而且共同创造和清晰表达其技术愿望。

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    Rogers Yvonne; Marsden Gary;

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