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Share and share alike? An examination of trust, anonymisation and data sharing with particular reference to an exploratory research project investigating attitudes to sharing personal data with the public sector

机译:分享和分享一样?对信任,匿名化和数据共享的检查,特别是涉及探索性研究项目的调查,该项目研究了与公共部门共享个人数据的态度

摘要

This article asks whether the necessity of many public services results in a readiness of individuals to share personal data, and thus sacrifice a certain level of privacy, in connection with their provision. It will explore the value of privacy in the context of the on-going debates around personal data sharing, with particular focus on the public sector in England, using the UK government’s care.data project as an example. The impact on trust relations between the government, the National Health Service (NHS) and the citizen will be considered. The importance of anonymisation of personal data as a method of minimising privacy risks and increasing trust will be discussed. Using the results of the author’s exploratory empirical study into attitudes to sharing personal data with the public sector, the article will suggest that the benefits-versus-costs privacy problem is particularly significant in relation to data sharing projects in the public sector. The lack of definitive answers in relation to the risk of re-identification contributes to the problem. Finally, the article will suggest that future work may wish to investigate how trust in, and acceptance of, data sharing initiatives could be improved by a bottom-up institution-led approach.
机译:本文提出,许多公共服务的必要性是否会导致个人准备共享个人数据,从而牺牲个人提供的隐私级别。它将以英国政府的care.data项目为例,在有关个人数据共享的持续辩论中探讨隐私的价值,特别是英格兰的公共部门。将考虑对政府,国家卫生局(NHS)和公民之间的信任关系的影响。将讨论将个人数据匿名化作为最小化隐私风险和增加信任度的方法的重要性。利用作者的探索性实证研究结果,研究与公共部门共享个人数据的态度,该文章表明,相对于公共部门的数据共享项目而言,利益对成本的隐私问题尤为重要。缺少与重新识别风险相关的明确答案会导致该问题。最后,本文将建议未来的工作可能是希望调查通过自下而上的机构主导的方法如何改善对数据共享计划的信任和接受。

著录项

  • 作者

    Oswald Marion;

  • 作者单位
  • 年度 2014
  • 总页数
  • 原文格式 PDF
  • 正文语种 en
  • 中图分类

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