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首页> 外文OA文献 >'Much clearer with pictures': using community-based participatory research to design and test a Picture Option Grid for underserved patients with breast cancer
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'Much clearer with pictures': using community-based participatory research to design and test a Picture Option Grid for underserved patients with breast cancer

机译：“图片更加清晰”：使用基于社区的参与性研究为服务欠缺的乳腺癌患者设计和测试Picture Option Grid

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OBJECTIVE: Women of low socioeconomic status (SES) diagnosed with early stage breast cancer experience decision-making, treatment and outcome disparities. Evidence suggests that decision aids can benefit underserved patients, when tailored to their needs. Our aim was to develop and test the usability, acceptability and accessibility of a pictorial encounter decision aid targeted at women of low SES diagnosed with early stage breast cancer. DESIGN: Community-based participatory research (CBPR) using think-aloud protocols (phases 1 and 2) and semistructured interviews (phase 3). SETTING: Underserved community settings (eg, knitting groups, bingo halls, senior centres) and breast clinics. PARTICIPANTS: In phase 1, we recruited a convenience sample of clinicians and academics. In phase 2, we targeted women over 40 years of age, of low SES, regardless of breast cancer history, and in phase 3, women of low SES, recently diagnosed with breast cancer. INTERVENTION: The pictorial encounter decision aid was derived from an evidence-based table comparing treatment options for breast cancer (http://www.optiongrid.org). OUTCOME MEASURES: We assessed the usability, acceptability and accessibility of the pictorial decision aid prototypes using the think-aloud protocol and semistructured interviews. RESULTS: After initial testing of the first prototype with 18 academics and health professionals, new versions were developed and tested with 53 lay individuals in community settings. Usability was high. In response to feedback indicating that the use of cartoon characters was considered insensitive, a picture-only version was developed and tested with 23 lay people in phase 2, and 10 target users in phase 3. CONCLUSIONS AND RELEVANCE: Using CBPR methods and iterative user testing cycles improved usability and accessibility, and led to the development of the Picture Option Grid, entirely guided by multiple stakeholder feedback. All women of low SES recently diagnosed with early stage breast cancer found the Picture Option Grid usable, acceptable and accessible.
机译：目的：被诊断患有早期乳腺癌的社会经济地位低下的女性在决策，治疗和预后方面存在差异。有证据表明，根据他们的需求量身定制的决策辅助工具可以使服务不足的患者受益。我们的目标是开发和测试针对被诊断为早期乳腺癌的低SES妇女的图形相遇决策辅助工具的可用性，可接受性和可及性。设计：使用思考协议（阶段1和2）和半结构化访谈（阶段3）进行基于社区的参与性研究（CBPR）。地点：服务欠佳的社区环境（例如，编织小组，宾果游戏大厅，高级中心）和乳房诊所。参与者：在第一阶段，我们收集了临床医生和学者的便利样本。在第2阶段，我们针对40岁以上，SES低的女性（无论是否有乳腺癌史）进行定位；在第3阶段，针对SES低的女性（最近被诊断出患有乳腺癌）。干预：图片遭遇决策辅助工具来自基于证据的表格，该表格比较了乳腺癌的治疗选择（http://www.optiongrid.org）。观察指标：我们使用思想协议和半结​​构化访谈评估了图片决策辅助工具原型的可用性，可接受性和可及性。结果：在与18位学者和卫生专业人员对第一个原型进行了初步测试之后，开发了新版本，并在社区环境中对53位非专业人士进行了测试。可用性很高。为了回应反馈，认为卡通人物的使用不敏感，在第二阶段开发了仅图片版本并与23名外行人员进行了测试，在第三阶段中测试了10位目标用户。结论和相关性：使用CBPR方法和迭代用户测试周期提高了可用性和可访问性，并导致了Picture Option Grid的开发，完全由多个利益相关者的反馈指导。最近被诊断出患有早期乳腺癌的所有SES较低的女性都发现Picture Option Grid可用，可接受和可访问。

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