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The involvement of significant others within a chronic pain management programme: the views of programme participants and significant others

机译：重要的其他人参与慢性疼痛管理计划：计划参与者和重要的其他人的观点

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The dynamic relationship which is widely recognised to exist between a person’s pain and their social environment provides a strong argument for the inclusion of significant others e.g. friends and family, in chronic pain management programmes. To date research concerning the involvement of significant others in chronic pain management programmes has been dominated by a quantitative approach, with a focus on comparing the effectiveness of programmes with and without the involvement of significant others. What is missing from the literature is research illuminating the perspectives of those with pain and significant others about the involvement of friends and family in pain management programmes.This study utilised a qualitative descriptive methodology to investigate the question: “What are the views of individuals who have participated in a Family Day, delivered as part of the 3 week multidisciplinary chronic pain management programme at The Auckland Regional Pain Service (TARPS), on the involvement of significant others within the programme?” The purpose of this research was firstly to investigate whether the theoretical rationale for involving significant others within a programme is supported in the views shared by those with pain and significant others. Secondly, to provide TARPS with feedback on their service and this may in turn identify opportunities to enhance programme delivery. Thirdly, the findings will contribute to the body of knowledge that informs the delivery of pain management services in general.Semi-structured phone interviews were held with eight people who volunteered to participate in this study after attending a Family Day at TARPS. Conventional content analysis of the interview data resulted in the emergence of two themes: Firstly, the involvement of significant others in the programme is important so that everyone is on the same page about pain and its management and secondly, the involvement of significant others in the programme is important so that significant others have the opportunity to access information and support. These views reinforce what is already known about the psychosocial dimension of pain and lend support for the theoretical rationale which is commonly used to justify the involvement of significant others in a pain management programme. The findings also extend existing knowledge about the involvement of significant others in a pain management programme in three ways. Firstly, they highlight a wish for significant others to be directly involved in the programme, rather than via media such as the internet. Secondly, the findings point to the importance of involvement finding a balance between what is feasible for significant others and beneficial for all, and thirdly the need for the involvement of children in the programme to be carefully considered. To my knowledge this is the first study that has sought to ascertain views on the involvement of significant others in a chronic pain management programme, from the perspective of those with pain and significant others. For those involved in the delivery of pain management services, the findings from this research highlight the urgent need for research into when and how significant others, including children, are involved within programmes
机译：人们普遍认为一个人的痛苦与他们的社会环境之间存在着动态关系，这为将重要的其他人包括在内提供了强有力的理由。朋友和家人参加慢性疼痛管理计划。迄今为止，有关大量其他人参与慢性疼痛管理计划的研究一直以定量方法为主，其重点是比较有或没有重大人参与的计划的有效性。文献中缺少的研究阐明了疼痛者和其他重要者关于朋友和家人参与疼痛管理计划的观点。这项研究使用定性描述方法研究了以下问题：“是否参加了一项“家庭日”活动，该活动是奥克兰地区疼痛服务中心（TARPS）为期三周的多学科慢性疼痛管理计划的一部分，其中涉及其他重要人员的参与？”这项研究的目的是首先研究在痛苦中与重要他人共享的观点是否支持在程序中包含重要他人的理论依据。其次，向TARPS提供有关其服务的反馈，这反过来可能会发现增强程序交付的机会。第三，这些发现将有助于为整体上的疼痛管理服务提供知识的知识体系。半结构化电话采访了八个人，他们参加了TARPS的家庭日后自愿参加了这项研究。传统的访谈数据内容分析导致出现了两个主题：首先，重要的其他人参与计划很重要，因此每个人都在同一页面上谈论痛苦及其管理；其次，重要的其他人参与了该计划。计划很重要，这样重要的其他人就有机会获得信息和支持。这些观点加强了人们对疼痛的社会心理层面的认识，并为理论依据提供了支持，该理论依据通常被用来证明重要的其他人参与疼痛管理计划。这些发现还通过三种方式扩展了有关重要他人参与疼痛管理计划的现有知识。首先，他们强调希望其他人直接参与该计划，而不是通过互联网等媒体。其次，调查结果指出了参与的重要性，要在对重要他人可行和对所有人有益的事情之间寻求平衡，其次，必须认真考虑让儿童参与该计划。据我所知，这是第一项研究，旨在从疼痛者和其他严重者的角度确定对其他重要者参与慢性疼痛管理计划的看法。对于那些参与提供疼痛管理服务的人来说，这项研究的结果凸显了迫切需要研究包括儿童在内的其他人何时以及如何参与到计划中

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    Swift Catherine;

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