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Clinical and Translational Science Sustainability: Overcoming Integration Issues between Electronic Health Records (EHR) and Clinical Research Data Management Systems 'Separate but Equal'

机译：临床和翻译科学可持续性：克服电子健康记录（EHR）和临床研究数据管理系统之间的集成问题“独立但平等”

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摘要

The use of health information technology (HIT) is growing rapidly for patient care systems required to test, diagnose and treat patients, and to bill for these services. Today's Electronic Health Record (EHR) systems are a response to this pressure, enabling feature rich computer-assisted decisions and communication. And even though EHR benefits dramatically outweigh the costs, required investments are nonetheless significant. Continuing to invest in HIT at a revolutionary rate is unsustainable given institutional financial constraints and continuing reimbursement cuts. Future improvements must come from new treatments, test methods, drugs and devices - from research. But data management information systems for clinical research receive less funding than patient care systems, and in less coherent ways. It is easy to imagine using the high cost, patient-based EHRs for clinical research data management, and thus accelerate the speed of translating new medical discoveries into standard practice. But taking this step requires thoughtful planning to overcome significant technology, legal/regulatory, policy, process, and administrative issues.
机译：健康信息技术（HIT）的使用迅速增长，可用于测试，诊断和治疗患者的患者护理系统，以及为这些服务的账单。今天的电子健康记录（EHR）系统是对此压力的响应，使特色具有丰富的计算机辅助决策和沟通。尽管EHR益处急剧超过成本，但仍然是重要的投资。在革命性的情况下，继续投资于革命性的兴趣，这给予了不可持续的制度财务限制，并继续报销削减。未来的改进必须来自新的治疗，测试方法，药物和设备 - 来自研究。但是，用于临床研究的数据管理信息系统比患者护理系统以及不太连贯的方式获得较少的资金。很容易想象使用高成本，基于患者的EHRS进行临床研究数据管理，从而加速将新医学发现的速度转化为标准实践。但是，采取这一步骤需要深思熟虑的计划来克服重要的技术，法律/监管，政策，过程和行政问题。

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