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首页> 外文会议>MEDINFO >Making Sense of Patient-Generated Health Data for Interpretable Patient-Centered Care: The Transition from 'More' to 'Better'
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Making Sense of Patient-Generated Health Data for Interpretable Patient-Centered Care: The Transition from 'More' to 'Better'

机译：对可解释的患者中心护理进行患者产生的健康数据感：从“更多”到“更好”的过渡

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The rise of health consumers and the accumulation of patient-generated health data (PGHD) have brought the patient to the centerstage of precision health and behavioral science. In this positional paper we outline an interpretability-aware framework of PGHD, an important but often overlooked dimension in health services. The aim is two-fold: First, it helps generate practice-based evidence for population health management; second, it improves individual care with adaptive interventions. However, how do we check if the evidence generated from PGHD is reliable? Are the evidence directly deploy able in realworld applications? How to adapt behavioral interventions for each individual patient at the touchpoint given individual patients' needs? These questions commonly require better interpretability of PGHD-derived patient insights. Yet the definitions of interpretability are often underspecified. In the position paper, we outline an interpretability-aware framework to handle model properties and techniques that affect interpretability in the patient-centered care process. Throughout the positional paper, we contend that making sense of PGHD systematically in such an interpretability-aware framework is preferrable, because it improves on the trustworthiness of PGHD-derived insights and the consequent applications such as person-centered comparative effectiveness in patient-centered care.
机译：卫生消费者的兴起和患者产生的健康数据（PGHD）的积累使患者将患者带到精密健康和行为科学的元素。在这个位置纸上，我们概述了一种可解释性的PGHD框架，这是一个重要的，但经常被忽视的卫生服务维度。目的是两倍：首先，它有助于为人口健康管理产生基于实践的证据;其次，它改善了自适应干预的个人护理。但是，我们如何检查从PGHD产生的证据是可靠的吗？证据是否直接在RealWorld应用程序中部署？如何在触点上适应每个患者的行为干预给出个体患者的需求？这些问题通常需要更好地解释PGHD衍生的患者见解。然而，可解释性的定义往往没有规定。在定位纸中，我们概述了一种可解释性感知框架，以处理影响患者中心护理过程中的解释性的模型属性和技术。在整个位置纸中，我们争辩说，在这种可解释性感知框架中系统地制定波夫德的感觉是优选的，因为它可以提高PGHD派生洞察力的可信度和随后的患者中心护理中的以人为中心的比较效果等所需的应用。

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