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Understanding the Mundane Nature of Self-care: Ethnographic Accounts of People Living with Parkinson's

机译:了解自我保健的平凡性质:与帕金森一起生活的人的民族造影

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Self-care technologies have been influenced by medical values and models. One of the values that was acritically incorporated was that self-care was medicalised, and, as a result, technologies were designed to afford use with clinicians and fit structured medical processes. This paper seeks to broaden the understanding of self-care in HCI, to acknowledge the mundane ways in which self-care is achieved. Drawing on in-depth interviews with patients and carers, and online ethnography of an online community, we describe how the self-care of Parkinson's is mundane. The fieldwork contrasts with more medicalised perspectives on self-care, thus we discuss the properties of a self-care concept that would acknowledge its mundane nature. Our hope is to sensitise designers to identify the mundane ways in which self-care is performed and, consequently, design technologies that better fit the complexities of everyday life with a chronic condition.
机译:自我护理技术受到医学价值观和模型的影响。 挥发性统一的价值之一是自我保健被医学,因此,技术旨在提供与临床医生的使用和适合结构化医疗过程。 本文旨在扩大对HCI的自我保健的理解,承认自我保健实现的平凡。 借鉴与患者和护理人员的深入访谈,以及在线社区的在线民族志,我们描述了帕金森的自我照顾是平凡的。 本实地的对比自我保健的观点形成对比,因此我们讨论了自我保健概念的属性,这将承认其平凡的性质。 我们的希望是敏感设计师来确定自我保健所进行的平凡方式,从而更好地符合日常生活复杂性的设计技术。

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