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Value versus Use for Patients: Findings from an ICT supported Cystic Fibrosis Self-Management Project

机译:患者的价值与用途:来自ICT的结果支持囊性纤维化自我管理项目

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This paper presents findings from the implementation of an online symptom monitoring diary that was part of a broader project aimed to support self-management of cystic fibrosis and the development of an online community of practice (CoP). The findings challenge conventional perspectives on how value is acquired by patients and their families from electronic tools designed to provide them with support. Additionally, the findings highlight complex relationships between user needs and subsequent tool use that challenge approaches to the measurement of value from ehealth projects.
机译:本文介绍了在线症状监测日记实施的调查结果,该日记是一个更广泛项目的一部分,旨在支持囊性纤维化的自我管理和在线惯例的在线社区(COP)。调查结果挑战常规观点关于患者及其家属如何从旨在为他们提供支持的电子工具获得的价值。此外,调查结果突出了用户需求与后续工具之间的复杂关系,并使用挑战从EHealth项目测量值的挑战方法。

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