Objective To investigate the status quo of resilience among systemic lupus erythematosus (SLE) patients, and to analyze its influencing factors.Methods Convenient sampling was used and 396 SLE patients were recruited from Rheumatism and Immunology Department in one Class Ⅲ Grade Ⅰ hospital in Xi'an from December 2016 to March 2017. The demographic and disease characteristics questionnaire, Connor-Davidson Resilience Scale(CD-RISC), Visual Analogue Score(VAS), Self-Rating Anxiety Scale (SAS) and Self-rating Depression Scale(SDS) were used to collect data. Multiple linear regression analysis was used to analyze the influencing factors of resilience. Results The overall resilience score of SLE patients was from 23 to 91 (54.16±16.96), which was lower than the national norm 65.46±13.93, n=560(t=13.174, P<0.01). Multiple linear regression analysis showed that education background, monthly per capita family income, exercise frequency, disease cognition, anxiety and depression were influencing factors of resilience and explained 50.8% of all the variations(P<0.05). Conclusion SLE patients have poor resilience and its influencing factors include education background,monthly per capita family income,exercise frequency, disease cognition, anxiety and depression. Medical staff should pay attention to both the disease and patients' mental status so as to improve patients' ability to fight against disease.%目的 调查系统性红斑狼疮患者心理弹性状况并分析其影响因素.方法 采用方便抽样法,抽取2016年12月—2017年3月就诊于西安市某三级甲等医院风湿免疫科门诊的396例系统性红斑狼疮患者作为研究对象,采用一般资料及疾病相关信息调查表、心理弹性量表、视觉模拟评分法、焦虑自评量表和抑郁自评量表对其进行问卷调查.采用多元线性回归,分析心理弹性的影响因素.结果 系统性红斑狼疮患者的心理弹性得分为23~91(54.16±16.96)分,低于国内常模[(65.46±13.93)分,n=560],差异有统计学意义(t=13.174,P<0.01).多元线性回归分析显示:文化程度、家庭人均月收入、运动情况、对疾病的认识程度、焦虑及抑郁进入回归方程(P<0.05),可解释50.8%的总变异量.结论 系统性红斑狼疮患者的心理弹性处于较低水平,受文化程度、家庭人均月收入、运动情况、对疾病的认识程度以及焦虑抑郁等因素影响.建议医护人员在系统性红斑狼疮患者的长期治疗过程中,关心患者的心理状况,重视对文化程度较低、经济负担较重患者的心理疏导,鼓励患者适当运动,做好健康宣教,及时有效缓解系统性红斑狼疮患者的焦虑和抑郁情绪,帮助患者提高应对疾病和适应病情变化的能力,改善其心理弹性状况.
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