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Service User- and Carer-Reported Measures of Involvement in Mental Health Care Planning: Methodological Quality and Acceptability to Users

机译:服务用户和护理人员报告的参与精神卫生保健计划的措施:方法学质量和用户接受度

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摘要

>Background: Increasing service user and carer involvement in mental health care planning is a key healthcare priority but one that is difficult to achieve in practice. To better understand and measure user and carer involvement, it is crucial to have measurement questionnaires that are both psychometrically robust and acceptable to the end user.>Methods: We conducted a systematic review using the terms “care plan$,” “mental health,” “user perspective$,” and “user participation” and their linguistic variants as search terms. Databases were searched from inception to November 2012, with an update search at the end of September 2014. We included any articles that described the development, validation or use of a user and/or carer-reported outcome measures of involvement in mental health care planning. We assessed the psychometric quality of each instrument using the “Evaluating the Measurement of Patient-Reported Outcomes” (EMPRO) criteria. Acceptability of each instrument was assessed using novel criteria developed in consultation with a mental health service user and carer consultation group.>Results: We identified eleven papers describing the use, development, and/or validation of nine user/carer-reported outcome measures. Psychometric properties were sparsely reported and the questionnaires met few service user/carer-nominated attributes for acceptability. Where reported, basic psychometric statistics were of good quality, indicating that some measures may perform well if subjected to more rigorous psychometric tests. The majority were deemed to be too long for use in practice.>Discussion: Multiple instruments are available to measure user/carer involvement in mental health care planning but are either of poor quality or poorly described. Existing measures cannot be considered psychometrically robust by modern standards, and cannot currently be recommended for use. Our review has identified an important knowledge gap, and an urgent need to develop new user and carer measures of care-planning involvement.
机译:>背景:越来越多的服务使用者和护理人员参与精神保健计划是一项关键的医疗保健优先事项,但在实践中却很难实现。为了更好地理解和衡量用户和护理人员的参与,至关重要的是要拥有心理上稳健且最终用户可以接受的测量问卷。>方法:我们使用“护理计划$ ”,“心理健康”,“用户观点”和“用户参与”及其语言变体作为搜索词。从开始到2012年11月对数据库进行了搜索,并于2014年9月结束了对数据库的更新搜索。我们收录了描述用户开发,验证或使用和/或护理人员报告的参与精神卫生保健计划的结果指标的所有文章。 。我们使用“评估患者报告结果的测量”(EMPRO)标准评估了每种仪器的心理测量质量。使用与精神卫生服务使用者和护理人员咨询小组协商后制定的新标准评估了每种仪器的可接受性。>结果:我们确定了11篇描述9个使用者/使用,开发和/或验证的论文。护理者报告的结果指标。心理测量学特性的报告稀疏,调查表的服务用户/护理人员提名属性几乎没有可接受性。在报告的地方,基本的心理计量学统计数据质量很好,表明如果接受更严格的心理计量学测试,某些措施可能会很好地执行。 >讨论:可以使用多种工具来衡量用户/护理人员参与精神保健计划的质量,但质量低劣或描述不清。现有标准无法通过现代标准从心理上衡量是可靠的,并且当前不建议使用。我们的审查确定了一个重要的知识差距,并且迫切需要开发新的用户和护理计划参与措施。

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