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Sharpening the focus: differentiating between focus groups for patient engagement vs. qualitative research

机译：重点突出：区分患者参与和定性研究的焦点小组

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Plain English summaryPatient engagement is an opportunity for people with experience of a health-related issue to contribute to research on that issue. The Canadian Strategy for Patient-Oriented Research (SPOR) highlights patient engagement as an important part of health research. Patient engagement, however, is a new concept for many researchers and research ethics boards, and it can be difficult to understand the differences between patient engagement activities and research activities. Focus groups are one example of how research and patient engagement activities are often confused.We distinguish these two types of activities by using different terms for each. We use focus groups to refer to research activities, and discussion groups to refer to patient engagement activities. In focus groups, researchers collect data by speaking with a group of research subjects about their experiences. Researchers use this information to answer research questions and share their findings in academic journals and gatherings. In patient engagement, discussion groups are a way for patients to help plan research projects. Their contributions are not treated as research data, but instead they help make decisions that shape the research process. We have found that using different language to refer to each type of activity has led to improved clarity in research planning and research ethics submissions.
机译：简短的英语摘要患者的参与度为有健康相关问题经验的人提供了一个对该问题的研究做出贡献的机会。加拿大针对患者的研究策略（SPOR）强调患者参与是健康研究的重要组成部分。然而，患者参与是许多研究人员和研究道德委员会的新概念，可能很难理解患者参与活动与研究活动之间的差异。焦点小组是研究和患者参与活动经常混淆的一个例子。我们通过对每种活动使用不同的术语来区分这两种活动。我们使用焦点小组来指代研究活动，并使用讨论小组来指代患者参与活动。在焦点小组中，研究人员通过与一组研究对象讨论其经验来收集数据。研究人员使用此信息来回答研究问题，并在学术期刊和聚会中分享他们的发现。在患者参与中，讨论组是患者帮助计划研究项目的一种方式。他们的贡献不被视为研究数据，而是有助于做出决定研究过程的决策。我们发现，使用不同的语言来指代每种类型的活动已导致研究计划和研究伦理的提交更加清晰。

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