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首页> 美国卫生研究院文献>other >The Context of Collecting Family Health History: Examining Definitions of Family and Family Communication About Health Among African American Women
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The Context of Collecting Family Health History: Examining Definitions of Family and Family Communication About Health Among African American Women

机译：收集家庭健康史的背景：检查非洲裔美国妇女中家庭健康的定义和家庭沟通

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Public health initiatives encourage the public to discuss and record family health history (FHH) information, which can inform prevention and screening for a variety of conditions. Most research on FHH discussion and collection, however, has involved predominantly White participants and has not considered lay definitions of family or family communication patterns about health. This qualitative study of 32 African American women, 16 with a history of cancer, analyzed participants’ definitions of family, family communication about health, and collection of FHH information. “Family” was defined by biological relatedness, social ties, interactions, and proximity. Several participants noted using different definitions of family for different purposes (e.g. biomedical vs. social). Health discussions took place between and within generations and were influenced by structural relationships (e.g. sister) and characteristics of family members (e.g. trustworthiness). Participants described managing tensions between sharing health information and protecting privacy, especially related to generational differences in sharing information, fear of familial conflict or gossip, and denial (sometimes described as refusal to “own” or “claim” a disease). Few participants reported that anyone in their family kept formal FHH records. Results suggest FHH initiatives should address family tensions and communication patterns that affect discussion and collection of FHH information.
机译：公共卫生举措鼓励公众讨论和记录家庭健康史（FHH）信息，这些信息可以为各种疾病的预防和筛查提供信息。但是，有关FHH讨论和收集的大多数研究主要是白人参与者，并且没有考虑家庭的家庭定义或有关健康的家庭沟通模式。这项针对32名非洲裔美国妇女（其中16名患有癌症的历史）的定性研究分析了参与者的家庭定义，有关健康的家庭沟通以及FHH信息的收集。 “家庭”由生物学上的联系，社会联系，互动和亲近来定义。几位与会者指出，出于不同目的（例如生物医学与社会），使用了不同的家庭定义。健康讨论在几代人之间进行，几代人之间进行，并且受到结构性关系（例如姐妹）和家庭成员特征（例如信任度）的影响。与会者描述了管理共享健康信息与保护隐私之间的紧张关系，特别是与共享信息的代际差异，对家庭冲突或八卦的恐惧以及否认（有时被描述为拒绝“拥有”或“宣称”疾病）有关。很少有参与者报告说，家人中有任何人保留正式的FHH记录。结果表明，FHH倡议应解决影响FHH信息讨论和收集的家庭紧张和沟通方式。

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