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首页> 美国卫生研究院文献>Brain Sciences >Paediatricians’ Views on Pain in Children with Profound Intellectual and Multiple Disabilities
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Paediatricians’ Views on Pain in Children with Profound Intellectual and Multiple Disabilities

机译：儿科医生对具有深切智力和多种残疾儿童痛苦的看法

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摘要

Pain is a frequent issue in children with profound intellectual and multiple disabilities (PIMD). Its identification and treatment can prove highly challenging for primary care physicians, mainly because of the children’s limited communication abilities. We used an online survey to explore paediatricians’ views regarding the experience and management of pain in children with PIMD and invited 480 professionals working in the canton of Vaud, Switzerland, to take part. We received 121 responses (participation rate 25.5%). A large majority of respondents provided care to children with PIMD. All paediatricians considered that these children feel pain at least as much as typically developing children. However, paediatricians had mixed views on their tolerance to pain. More than 90% held the view that their pain is under-assessed and undertreated. The principal barriers they reported to appropriate management were communication limitations with the child, difficulties in pain assessment, lack of knowledge about children with disabilities and lack of experience. Paediatricians have complex opinions regarding how children with PIMD experience pain and how to manage this problem. Professional education and training on the specificities of children with PIMD, including how to address their pain, seem necessary to foster paediatricians’ ability and confidence in approaching this complex issue.
机译：痛苦是具有深切知识和多种残疾的儿童的常见问题（PIMD）。其识别和治疗可以证明对初级保健医生的认真挑战，主要是因为儿童的沟通能力有限。我们使用了在线调查来探索有关PIMD痛苦经验和管理的儿科医生的看法，并邀请了480名在瑞士沃州副州工作的专业人士参加。我们收到了121个答复（参与率为25.5％）。大多数受访者为有限利毕的儿童提供了护理。所有儿童学习人员都认为这些孩子至少像往常一样患有较多的痛苦。然而，儿科医生对他们对痛苦的耐受性混合了观点。超过90％的人认为，他们的疼痛被评估和未治疗。他们向适当管理报告的主要障碍是与儿童的沟通局限性，疼痛评估困难，缺乏对残疾儿童和缺乏经验的知识。儿科医生有关如何对PIMD的痛苦和如何管理这个问题的儿童的复杂意见。专业教育和培训与PIMD的儿童的特殊性，包括如何解决他们的痛苦，似乎有必要促进有必要的，培养有必要的人在接近这种复杂问题方面的能力和信心。

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