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Social Problems in Turner Syndrome

机译:特纳综合征的社会问题

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Turner girls, women and their families have several social problems at all stages of life. The family usually feel shock at the diagnosis of Turner syndrome. In 1991, we organized a Turner society in Osaka. Several other Turner societies have been established in different areas in Japan. A questionnaire about social problems was sent to the members of the Turner Society. Ninety-four responded, and the response rate was 56%. Half of the parents feel that during infancy the Turner girls were difficult to bring up. One third of the mothers indicated that they were too nervous to bring up the baby. During school life, half of the Turner girls were bullied. In academic performance, two thirds of Turner girls were average or better than average. Many Turner girls said that they disliked mathematics and gymnastics. Information about Turner syndrome is important for Turner girls. Not a few of them were upset when they got the information. Of 10 individuals who had a job, three Turner women had experienced difficulty in finding a job. One third of Turner women above 19 years of age have boy friends. We need to follow them up as to marriage.
机译:特纳女孩,妇女及其家庭在生活的各个阶段都面临一些社会问题。家庭通常对特纳综合征的诊断感到震惊。 1991年,我们在大阪成立了特纳协会。日本的其他地区也建立了其他几个特纳社团。有关社会问题的调查表已发送给特纳协会的成员。九十四回应,回应率为56%。一半的父母认为,特纳女孩在婴儿期很难抚养。三分之一的母亲表示,他们太紧张而无法抚养婴儿。在学校生活中,一半的特纳女孩被欺负。在学业上,特纳女孩的三分之二是平均水平或好于平均水平。许多特纳女孩说,他们不喜欢数学和体操。有关特纳综合征的信息对于特纳女孩很重要。他们中的少数人在获得信息后就感到沮丧。在有工作的10个人中,三名特纳妇女在找工作上遇到了困难。 19岁以上的特纳妇女中有三分之一有男朋友。我们需要跟进他们的婚姻。

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