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首页> 外文期刊>Communications of the Association for Information Systems >Integrating Users in an Interactive Video Education Project: Reframing the Patient-Centered Strategy of a Cystic Fibrosis Centre
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Integrating Users in an Interactive Video Education Project: Reframing the Patient-Centered Strategy of a Cystic Fibrosis Centre

机译：将用户整合到交互式视频教育项目中：重新定义囊性纤维化中心以患者为中心的策略

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This article reports on the formative evaluation of WebPEP (“Web-Based Patient Education Program”), an interactive video education project at ErasmusMC–Sophia Children’s Hospital (SCH) in Rotterdam, the Netherlands. Through monthly live webcasts, doctors, nurses, psychologists, and other healthcare professionals affiliated to SCH’s Cystic Fibrosis Team gave presentations on medical and psychosocial aspects related to cystic fibrosis (CF). These webcasts were first intended to educate and be educational to children between the ages of twelve and eighteen, but during the first year of the project they failed to attract this specific group. Instead, they generated unexpected enthusiasm among parents of young patients. The central question in this article is: How were patients “integrated” in the development of the WebPEP application? We show how the project’s initiator reacted to the lacking participation by prospective users: informed by the evaluation, he gradually shifted his attention from live interaction to the expansion of the video library, where the webcasts were stored for on demand viewing. Based on interviews and participant observations, we describe how the initiator reconfigured the WebPEP application and its users, and therewith reframed the CF Centre’s online patient education strategy. We discuss the importance of investigating the prospective and actual use of patient-centered e-health (PCEH) applications, and argue that a single technological artefact can be involved in different, coexisting practices of patient-centeredness. We conclude with a reflection on how formative research methods can contribute to the development of PCEH.
机译：本文报告了WebPEP（“基于网络的患者教育计划”）的形成性评估，WebPEP是荷兰鹿特丹ErasmusMC-索菲亚儿童医院（SCH）的交互式视频教育项目。通过每月的实时网络广播，SCH囊性纤维化小组的医生，护士，心理学家和其他医疗保健专业人员对与囊性纤维化（CF）相关的医学和社会心理方面的内容进行了介绍。这些网络广播最初旨在对12至18岁的儿童进行教​​育和教育，但是在项目的第一年，他们未能吸引这一特定群体。相反，他们在年轻患者的父母中引起了意想不到的热情。本文的中心问题是：如何将患者“整合”到WebPEP应用程序的开发中？我们展示了该项目的发起者如何应对潜在用户缺乏参与的反应：通过评估，他逐渐将注意力从实时互动转移到了视频库的扩展上，该视频库中存储了网络广播以供点播观看。基于访谈和参与者的观察，我们描述了发起者如何重新配置​​WebPEP应用程序及其用户，并由此重新构造了CF中心的在线患者教育策略。我们讨论了调查以患者为中心的电子卫生（PCEH）应用程序的预期用途和实际用途的重要性，并认为单个技术人工制品可能涉及以患者为中心的不同，共存的实践。我们以反思性研究方法如何对PCEH的发展做出贡献作为结束。

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